You Have Cancer

At the closing ceremony of Relay For Life on Sunday at the Millennium Institute in Mairangi Bay, Auckland, New Zealand, we were told these are the worst 3 words you can hear in your life. As part of Team Hope Fighters, I was one of a group of awesome people who raised funds through a variety of activities culminating in an 18 hour walking relay. Our group walked the equivalent of Auckland to Blenheim and the full compliment walked the equivalent of Auckland to New York via Los Angeles, collecting over $120,000 for cancer research along the way.

Team Hope Fighters

I lost my first friend, my best childhood mate to cancer at the age of 9. Since then, like most people I have lost lots more. My grandmother, my father-in-law (who was a past President of the Lost Chord Club) and many more. I have relatives who are survivors and one who has only recently found out they have cancer and who didn’t want to tell me.

Relay For Life is a poignant event, which starts of with a Survivors Lap, lead by people who are in remission or still battling this horrendous condition. Many of these people marched for much of the 18 hours of this event which was very inspiring.

We walked through the night and I was pleased to survive sans blisters and managed just over a marathon

Walking through the night

distance, which was a real achievement for me considering I hadn’t trained. One monster in our team was in training for a super marathon in 3 weeks time. I’m not sure exactly how far he ran, but it was in excess of 140km which was amazing.

Blues in the night

During the night there were various activities including games, bands, the lighting of the HOPE lights, food stalls

HOPE

including bacon butties (something my stomach couldn’t handle the thought of at 3 in the morning, despite the pervasive aroma which I would normally relish) but I did see a number of Police enjoying them after a brief team run in full kit, very brief I might say, but it was great to see them there. It would be really cool to see an official team from them next year:)

Candle Tribute Bags

People created candle bags (LED Candles for safety) and left messages for loved ones which twinkled during the night, adding to the spectacle. Reminding people why we were there.

I made an interesting discovery at about 4 in the morning which was that it was pretty much just as painful getting back up and moving after sitting down for a while as it was being back on the track, so back I went.

Looking out from our tent site

Ultimately this was an awesome event, which despite having said after walking through the mud in Kumeu last year, that I wouldn’t do it again, I will most likely do it again next year, although I might train for it next time. After all I can’t be satisfied with only 44km in 2014:)

Don’t judge me

In closing many thanks to my personal sponsors, to all sponsors, huge thanks to the many volunteers and kudos to the cancer survivors. Cancer doesn’t respect age, gender, ethnicity or anything else and I doubt there is anyone who hasn’t been touched by it themselves or through a friend, family member or colleague.

One footnote. I’m seeing ads on TV for cycling for cancer and other events, which appear to be commercially funded. I didn’t see any news media at this event at all, despite the number of people all giving their time for free other than a TV crew who appeared to be recording a documentary. Where was the NZ Herald? Where were the radio stations? Where was TV One and TV 3? Where was the North Shore Times?

I feel sick and sad this morning

Footnote to my story in November called “Why don’t auckland hospitals work smarter rather than harder.” and the previous one The Hospital is the best place to be when you are sick, or is it?

My friend passed away this morning after an agonising battle with cancer. One has to wonder how much easier it would have been for her if she had received the treatment she was entitled to at the times she was turned away due to strikes and staff shortages. I’m sure she would still be with us today if she was able to receive the treatments and surgeries she was scheduled for.

Her husband is one of those nice old school Kiwi guys who listens to what he is told and didn’t want to rock the boat. He refused to fight through the management or the media to get the treatment his wife needed because he felt that was not the way you behave. Now he has lost his wife and soul mate too soon. We had to respect his right to be true to himself, but I’m not sure we have to accept the system that put him in that position.

My advice, if you are in a situation like that, where lives can be saved or prolonged and the bureaucratic penguins and the system is holding stolidly fast to this is where the line starts and if you’re not there anymore when you get to the end of the line, will the next patient shuffle forward, make a noise like someone’s life depends on it, especially if it does. People who go to the media miraculously get the treatment they need and sometimes before its too late.
We Kiwis need to stop being PC and accepting the bs that comes from our health industry. Note its not the wonderful hospital staff, they are put in an invidious position by the administrators, by the beurocrats and by the politicians who sleep sound at night and whose close ones are probably not getting turned away because “a registrar is off sick and the shift couldn’t run”. They are the ones who have to lie to the patients and their families when cost cutting measures, old fashioned systems full of lost paper files and ancient systems, and cost cutting means many people don’t get their surgeries, live or die in pain.

This person’s story is over. We won’t be going to the media or fighting because it is not what her husbands wanted. I respect that and much as it burns me, I will not add to his grief or risk creating feelings of guilt to him to make matters worse. He came from a generation who said yes sir, I know you are doing your best and genuinely trusted that. She may still have died, in fact probably would have, but she might have had a few more years and she certainly wouldn’t have suffered the degrees of agony of that she did over the last 4 months. We don’t do that to animals.

If you find yourself in a situation like this, make a noise, get your loved ones help, let the media know and as a country we have to get our government and administrators to invest in the new technologies that in the long run will cost less and save more lives.

Why don’t Auckland Hospitals Work Smarter Instead of Harder

 

 

Air NZ Customer Service

I was going to blog about 3D Bio-Plotting today and if this is of interest to you, bookmark or subscribe to the RSS feed. This is going to be a very exciting disruptive technology that has the potential to have a huge impact on our life expectancy and the health industry.

In my last blog I wrote about how John Donahoe, CEO of eBay has a good understanding of what business eBay is in and it isn’t helping people buy and sell things online, or about their recent purchase of Red Laser for comparison shopping.

I wonder if Air New Zealand really understand what their business is at times. If you read their Vision Statement and Guiding Principles, it doesn’t say anything about the travel experience, or about the social relationship with customers or being the facilitator of people’s dreams. In fact a lot that Air New Zealand does is about that, but at times they seem to lose track of that and of course their major focus is on delivering a dividend to their share holders. The bottom line is people do business with people, like me. Individuals who have feelings, not just bums on seats as they say in the hospitality business.

In What Would Google Do, by Jeff Jarvis, still one of my favorite books, this is what he says about airlines:

Air travel’s business model today is based on overselling seats, billing us for checking bags, charging us for pillows and pretzels and just about everything they can think of but air………………. Does that sound familiar. I know it is hard to run an airline profitably, but as someone who has traveled around the world at least a dozen times, there have been many years where I spent 4 months of the year travelling, I understand that traveling is stressful and tiring and little things like being stuck in transit at San Francisco Airport for 8 hours because the Air NZ counter doesn’t open till 90 minutes before the flight and they don’t have an interconnect deal with their partner Lufthansa can be frustrating. They don’t engender loyalty, which I can assure you cost them a lot of money from me from time to time. I have also declined the two invitations to take out an Air NZ Platinum American Express Card. Why would I support an organisation like that, which doesn’t put me first?

Anyway, I started this blog because of frustration over my latest experience with Air New Zealand. Now I have to say that all the people I have spoken to at their service center have been friendly and polite and helpful to a point. But they fall down on some simple things like detail.

So here’s what happened. Last year my wife an I booked flights to Sydney to attend a wedding in Hunter Valley. Prior to the wedding, we were told that my father in law had weeks to live as he had a recurrence of cancer that he was not going to beat. We had to cancel the flight for which we paid $944.20 including taxes and Air NZ said that due to compassionate grounds they would hang on to our money and allow us to rebook at a later date within 12 months, which we thought was reasonable.

I re-booked in January for a trip at the end of this month (I have flown with Air NZ a number of times since then including a trip to Rarotonga in October). I gave my credit card details for the $150 re-booking fee (for 2 of us). Yesterday I went to print off the tickets and organize travel insurance and there was no email. I rang the call centre to find out why and after being transferred and disconnected and waiting a while to speak to someone again, I was told that the flights had been cancelled because they hadn’t been paid for. I was flabbergasted. I gave her my credit card details on the spot, but on checking yesterday, my card account had not been debited. I have already paid in advance for accommodation and we had both applied for leave etc and made arrangements to meet friends over there etc.

Anyway, the nice friendly chap I spoke to went and spoke to his supervisor and apparently, they can still get us on the same flights, but it would now be more expensive for the transfer fee of the tickets. They wanted to talk to the call center person who arranged the booking for us and she is not back until Monday, so they will get back to me on Monday or Tuesday.

So here’s the thing. I have no certainty for one or two more days that I will in fact get those flights and I may have to pay more for my tickets than the extra $150 which in itself would mean that we are paying $1,094.20 for 2 return flights to Sydney from Auckland, at the same time that Flight Center is offering one way tickets for $79 plus taxes (including one bag) at their travel expo.

I can’t believe that the supervisor couldn’t have just authorized the deal on the spot and taken my credit card details once again. What does it cost them for their time to document the discussions, chase the previous consultant who I believed had booked my flights, confirm back to the consultant who I spoke to yesterday and then have him ring me on my mobile to hopefully tell me they will honor the arrangement we had made in the first place. My cost is of course stress for myself and my wife as to whether we will be on the flights booked, that we won’t lose the money we prepaid for accommodation and so on, and it certainly sours our anticipation of a nice little holiday.

On top of that Air New Zealand have had the use of just under a thousand dollars of our money for free for a year. Wouldn’t it have been cheaper and more expedient to just say, sorry, something has gone wrong here, we can’t explain it, but if you will give us your credit card details again, we will send you a confirmation email in around 15 minutes. We hope you enjoy your trip with Air New Zealand. Then I would be writing a blog saying how wonderful and caring Air NZ was, even after they had clearly slipped up. It’s been my experience that often its not the problem but the way it is dealt with that makes all the difference. Frequently when a company has a problem and deal with it well, they will end up with more loyal clients than they would have had if the problem had not occurred in the first place.

OK, I’ve had my vent and will let you know if Air NZ fix things for me or not.

In the meantime, what about your experiences with airlines. What do you think of their visions and their customer service? Do you feel they have a good balance between customer service and shareholder satisfaction? Are you loyal to a particular airline? Why?

Why don’t Auckland Hospitals Work Smarter Instead of Harder

A friend of mine was prepped for 2 days with nil by mouth a month or 2 ago for urgent cancer surgery. The first day she got bumped and the 2nd day was the start of a radiographers strike. Last night she was prepped for an 8 hour operation and got bumped due to a critical case that suddenly appeared. We thought she was criticial, but obviously that’s not for us to judge.

I’ve asked the question before “Is hospital the best place to be when you are sick?” and pretty  much decided unless it was a private hospital, possibly not. But of course most of us don’t have any choice especially as we get older.

It is nice to see that some things are improving. For example Auckland Health Board has decided to send some patients to private clinics for radiation treatment to reduce waiting times.

I had blogged previously about waiting times at North Shore Hospital based on experiences waiting with family members in A & E and subsequently in corridors in some cases for days, without being assigned to wards. Each time we were told that it was an exceptional case and we were just unlucky. A registrar was sick and therefore his team couldn’t operate was a common excuse. Think about it, an entire team doesn’t operate because one person doesn’t turn up? Maybe they were stretching the truth, being they are short staffed and can’t afford another registrar, and they didn’t turn up because they didn’t exist.

According to the reports, North Shore Hospital is improving and it is now only the 3rd worst in New Zealand. North Shore Hospital supports North Shore and Waitakere with an excess of 400,000 population and rapidly growing. Of course things will change with the new Super City, but the problems won’t go away.

As you can see in previous blogs I’ve written such as ‘76 Deaths, Surgical Mistakes in New Zealand Hospitals‘ I have been pushing for more specialized technology to streamline processes for many years. The technology has been around for a long time, yet we still seem to rely heavily on paper. Tablet and handheld computing has been around for a long time. Most of us use WiFi in the home, in cafe’s, at the airport and understand the power of dealing with information once, accurately and allowing instant access to anyone who needs it in a timely fashion. That’s how we live.

I now see bar codes on patient wrist bands, but I don’t see them being read by a handheld computer to check for allergies, conditions etc at the bedside. This technology could have saved many NZ lives at a tiny fraction of the cost of their lost lives, productivity etc.

When I started promoting this technology, it was with Pocket PC, Palm and Symbol technologies (handheld computers, 3D Bar Code Readers, Portable Printers, Digital Cameras which were being used in many US and European hospitals and that was 20 years ago!

Today there is superior technology such as the Panasonic Mobile Clinical Assistant CF-H1 which runs on Windows 7. The video is pretty corny but it really does illustrate how efficient it is to use mobile technology. Of course this technology has a rugged drop spec, is chemical resistant, lasts 6 hours on a standard battery.

This technology means everyone is in sync and has access to critical data on demand. Paper gets misplaced in hospitals. I had one visit with a daughter that was delayed by 90 minutes simply because someone had misplaced her file. Data can be shared with specialists and medical staff in and out of hospital, including images such as scans, x-rays, photos, test results, charts and graphs. Allergies and condition interactions can be monitored to minimise risk of causing new problems, doses can be confirmed, approvals provided remotely. Pretty much the whole world’s medical knowledge is available online today.

Today’s world should be about harnessing technology to work smarter rather than harder. I suspect the focus is on cost of the technology because our hospitals are run by administrators tasked with saving money. Of course they are largely man aged by politicians. If health is a major election platform every election, why is it that the performance is still so poor?

Next time you are in hospital, have a look at how they use or don’t use technology. Think about how you operate in your business. Think about what’s at stake and ask them why they do things the way they do.

We have national elections next year. They will be talking about improving the health system. Will they be talking about improving the ICT structure and putting information in the hands of the clinicians? Or will they be talking about saving money, improving the monitoring of staff performance and measuring waiting times in A&E?

We have an ageing population and growing population. They are going to need more services and we could increase our throughput, reduce patient risk, significantly improve outcomes by harnessing technology, working smarter rather than harder, expecting great results from staff working double shifts several times a week.

Why do people still smoke?

With the amount of information about the effects of smoking, it amazes me how many people still want to smoke. My father in-law had a laryngectomy several years ago and speaks through a valve in his neck. After several years of remission he now has tumors in his bladder. My mother in-law has emphysema and cerebrovascular disease, which is similar to Alzheimer’s Disease with similar symptoms. She still smokes.

The cost of smoking increases constantly with taxes and governments have been forcing manufacturers to add more and more horrific images of rotting lungs and other consequences, but to little avail.

It is now known that current smokers have a 50% greater likelihood of getting dementia and are 70% more likely to get Alzheimer’s Disease. It deems this hasn’t had the same publicity as other consequences, perhaps because there is no cure, or operation to help people recover from it.

For people that want the nicotine rush, but want to avoid the tar and other carcinogens that come from tobacco, there are now other alternatives. One is nicotine gum. I used this myself some 20 years ago when I decided it was time to give up. The gum worked for me because I wanted to give up and by continuing the supply of nicotine I was able to get over the psychological urge to smoke.

Now there are E-CIG’s which allow you to continue getting the nictotine rush as well as the need to have something in your hand, to put in your mouth and suck in that deep breath, inhaling a measured shot of nicotine sprayed from an atomiser and then having a nice relaxing exhale. This could one day become quite the vogue for people who want to enjoy smoking, but want to avoid the risks. There are several benefits. You don’t have to be a pariah, standing out in the cold, excluded from enjoying your passion, barred from restaurants and drinking establishments.

There are some ironies in the smoking statistics. In the US, the highest percentage of smokers are those just above the poverty level at 29.9%. Overall around 24% of men and 20% of women in the US smoke tobacco. You often hear of people saying the smoke because they can’t afford many vices and smoking makes them feel better. Off course we all know that those same people also have a lower life expectancy. Some of it might be down to access to medicine, not having medical insurance and so on, but those that can least afford it seem to spend the most money on alcohol, gambling and smoking (to list the legal things).

In New Zealand around 25% of people smoke and a worse statistic is that around 174 to 490 non smokers die from second hand smoke.

There is no end in sight and while in countries like New Zealand it is pretty much illegal to advertise tobacco in any form, hope over to countries like Jamaica and you will see enormous ‘statues’ of packs of cigarettes and billboards of people with big smiles on their faces as they take a big lungfull of tar.

I would love to see support for the E-CIG’s because if people got the same stimulation, even if they don’t have fun curling the smoke from their mouths to their noses, or blowing smoke rings, they would at least live longer. I don’t know how bad the nicotine is as a stimulant.  I did some research on whether nicotine is harmful in itself and there are conflicting opinions and I guess given the commitment of manufacturers to keep making and selling tobacco products, there is potential for bias.

The main thing people say is that nicotine is an addictive substance, but my experience was that nicotine chewing gum made it so much easier for me to give up smoking. The evidence on smoking tobacco is irrefutable and the many court cases the tobacco industry has lost bear testiment to this.

I have a problem with intelligent people using and abusing drugs. Whether it is overuse of prescription drugs, smoking, taking mild or dangerous drugs such as methamphetamines or binge drinking. Many of my friends drink alcohol every day and many can’t open a bottle of wine without finishing it in one sitting. Many are happy drinking a whole bottle on their own, several times a week. I have a friend who works in a prison with methamphetamine addicts and told me that they have inmates who have virtually no brain left. That warden still smokes and drinks to excess.

So here’s a lits of what intelligent people are legally risking with tobacco smoking according to the Mayo Clinic:

• Lung cancer and other lung diseases. Smoking causes nearly nine out 10 of lung cancer cases, as well as other lung diseases, such as emphysema and chronic bronchitis. Smoking also makes asthma worse.
• Heart and circulatory system problems. Smoking increases your risk of dying of cardiovascular disease, including heart attack and stroke. Smoking 15 cigarettes a day doubles your heart attack risk. Even smoking just one to four cigarettes daily increases your risk of heart disease. If you have cardiovascular illness or heart failure, smoking worsens your condition. However, stopping smoking reduces your risk of having a heart attack by 50 percent in the first year.
• Other cancers. Smoking is a major cause of cancers of the esophagus, larynx, throat (pharynx) and mouth and also is related to cancer of the bladder, pancreas, kidney, cervix, stomach, and some leukemias.
• Physical appearance. The chemicals in tobacco smoke can change the structure of your skin, causing premature aging and wrinkles. Smoking also yellows your teeth, fingers and fingernails.
• Infertility and impotence. Smoking increases the risk of infertility in women and the chance of impotence in men.
• Pregnancy and newborn complications. Mothers who smoke while pregnant face a higher risk of miscarriage, preterm delivery, decreased birth weight and sudden infant death syndrome (SIDS) in their newborn. Low birth weight babies are more likely to die or have learning and physical problems.
• Cold, flu and other illnesses. Smokers are more prone to respiratory infections, such as colds, flu and bronchitis, than are nonsmokers.
• Diabetes. Smoking increases insulin resistance, which can set the stage for the development of type 2 diabetes. If you have diabetes, smoking can speed the progress of complications such as kidney disease.
• Impaired senses. Smoking deadens your senses of taste and smell, so food isn’t as appetizing as it once was.
• Risks to your family. Spouses and partners of smokers have a higher risk of lung cancer and heart disease, compared with people who don’t live with a smoker. If you smoke, your children will be more prone to sudden infant death syndrome, asthma, ear infections and colds.

So I’ll leave the last note to doctor’s of yesteryear:

While this blog is starting to get a good following, I would love to get more readers and encouraging me to keep writing. If you feel that my blog is interesting I would be very grateful if you would vote for me in the category of best blog at the NetGuide Web Awards. Note that the form starts each site with www whereas my blog doesn’t and is of course http://luigicappel.wordpress.com.

Thanks so much for your support:)

Canteen’s Bandanna Week

When I was 8, my best mate died of leukemia, also aged 8. It was hard to comprehend, he had been sick for a long time and his family were very religious and somehow managed to cope. Since then another good friend died aged 20, just when life was going really well for her. Her partner who was totally devoted to her was obviously devastated and spending time with them at home and in hospital during her chemo visits was very difficult. She kept up a very brave face, but it was obvious that she was struggling with fear, dissapointment, frustration, why me, nausea, hair loss, energy loss, anguish for her partner and her family, I could keep going, but you get the picture.

New Zealand is highly regarded when it comes to cancer. When my late grandmother came to New Zealand on holiday, she had a collostomy bag, she had one kidney and had spent a year in hospital with over 50 operations. New Zealand was one of the few countries her doctors were confident about her visiting because of the reputation of care here.

We pay taxes for health care and some of it goes to research, but there are many more services that are essential, and today I have a Canteen bandanna around my neck as a tiny contribution of recognition to some of the services that Canteen facilitates.

One of the most important ones in my book is support. There is noone better to help a young cancer sufferer than someone who has been through it and uderstands what they are experiencing and going through. Noone else can really empathise.

According to a statement on Infonews there are currently 12,500 young people up to the age of 24 living with cancer or a sibling and this grows by hundreds each year.

The $4 donation I gave seems pitiful, but if 4,000,000 of us do it, it might be a different story. There are other opportunities. There are a number of bandannas on Trade Me signed by celebrities. There was supposed to be one signed by Elle McPherson, but I couldn’t find out, so I’ve put a bid on one signed by Donald Trump.

Anyway, Canteen does an awesome job and I hope they raise loads of money for this important cause. Let’s make these young people’s lives mean something and give them a lending hand.

I’m also planning one or more songs about cancer, but you’ll have to keep an eye on my Songwriting blog in the coming weeks to learn more about that.

And When I Die……………

Lately there have been a number of ads and programs on TV showing video’s that people made for their children and families to watch after they die of cancer. It’s an opportunity to leave messages for the future and to tell people those last important things like how proud they are and how much they love their family.

It got me to thinking about funeral music. No I’m not being morbid, but I have been to funerals where people play music, perhaps recommended by the funeral director, or what other people think would be nice.

When I die, I would like to have the last say and play the music that reflects who I am and what I like. I’m thinking a little Carlos Santana, like Samba Pa Ti which is one of my ultimate favourites, I love the what I call romantic melodies that he plays with the long full bended notes. There’s another one off the Album Caravanserai which is similar, so that’ll be on the list. I can’t remember the tune so I’ll have to dig it out.

Then there is another one that I love from Phil Guy called Professor’s Boogie. I don’t know whether it was written by Professor Eddie Lusk or a collaboration, but it has given me many happy listens. I had the privilege of meeting Phil, who is Buddy Guy’s brother at Koko Taylor’s Club in Chicago several years ago and I love his music. It was an honour to meet him and I treasure my autographed CD.

Another song that will be on my list is I Can’t Quit You Babe, but actually not Willie Dixon’s version but Since I’ve Been Loving You from Led Zeppelin lll, which was one of my favourite albums.

Finally I’m going to write my own song which I will leave behind as a message to those that I will leave behind, telling them how much I love them and how proud I am of them. It will be my final parting gift that I can perform for them, so I will be at that final farewell. I haven’t started writing it so I better not get hit by a bus or anything. Maybe I’ll be able to include a few full long bendy notes of my own along with my last words. Now don’t get me wrong, I intend to be around for a long, long time and write many more songs, but wouldn’t it be great to be able to leave something special for people to remember? It won’t be something sad, it will be a thank-you for all the opportunities I’ve had and the love I’ve shared.

So I had better start writing it soon so I can put aside the tracks that I will play for the very last time. Have you thought about what you would like to have played at your final celebration, your funeral?