I was sitting in the car park having finally remembered both my water and my star chart on the same day (I have today off!) for my 11th day of external beam radiation treatment and I was thinking, ‘why can’t they just use a light sabre, there seem to be an awful lot of them around this year’. I’m not sure I’d want to DIY though, I might lose more of my anatomy than intended.
It is now becoming pretty routine. Sign in, confirm my appointment for tomorrow. Do I still want my nurse’s appointment? Yes because the odd little side effect is starting to show and I want to discuss them. I now have some sample sachets of Ural which may help improve my flow, so I don’t have to stand there reading my emails while I wait, despite my bladder telling me I’m busting. Makes me wonder if the guy standing next to me adjusting his tie also has prostate cancer. I didn’t want to turn around and ask in case the Ural suddenly started working!
I started off listening to audio books on the way in, that was my plan, but I found that I was thinking so much that I couldn’t remember what I’d heard so the quantum physics and cosmic strings of big data as applied to Sociology 301 might have to wait until later in the day.
Maybe it’s the lack of coffee at 6 in the morning. A diuretic is not a good look when you’re trying to arrive and hang on to a semi full bladder.
Now it’s Spotify. I listen to new music Tuesday in the car until new music Friday comes along, in between I listen to starred and radio likes from starred. If you use Spotify, you’ll know what I’m talking about.
Off downstairs, clothes off, lava lava on, clothes in the bag, bag on a shelf and look; they have Christmas decorations. I must thank them for making the effort. When I go in on Sunday, so do they. The little things matter.
I get to the circle of chairs around the table in the waiting lounge and greet my fellow travelers, all on our different crusades, fighting off evil unwanted invaders.
I’ve noticed something about the discussion today. There isn’t much. One of the patients has his wife with him for support. That stops people asking questions about urine flows and side effects, like the guy with throat cancer who can’t taste or smell. Fortunately for him that isn’t permanent.
There is definitely a gender element to cancer chat. I am sure that when a group of women are together here on their own, they will be just as frank and open as our groups of men are when we are on our own. But neither group wants to talk about the side effects, the after effects or the fears they are burdened with in a mixed group.
I still find it a little daunting talking to the nurses and radiotherapists about what’s happening. I don’t want to sound like I’m complaining and my natural answer when anyone asks me how I am is to reply with “great!” And when I give them a big grin (as much as anyone gets a big grin from me) I get a little rush of endorphin’s and feel better anyway. What they want to know is of course, do you have any problems that we need to know about; because we do need to know.
So today I slept in which was great, except that I woke up at 2AM with a mind full of work and other things, so I took half a sleeping pill and woke up again around 8.
I’m definitely starting to get tired. I had the house to myself last night and straight after dinner I went to my music room. I picked up my beautiful old Takamine and my arms were like lead and so was my brain. After 15 minutes I decided that wasn’t happening. I’m working on some old and new material and really wanted to get into it, especially after attending an early show of The Lady Killers on Thursday night, who were awesome as usual. I would have taken a photo, but Jackie made a comment to the guy in row one being able to look straight up her nose, well I was in row 2 and would have got her epiglottis or tonsils (if she still has them).
We agreed that next time we go to Q Theater to go for row 4! These ladies are great medicine I have to say. If you get a chance, go see them (they appear to be avoiding family Christmases by gigging almost every night) they are fantastic and their commitment to every performance is as if it is the most important one they will ever do. Their talent is amazing and the strength in their voices remains as good or better than ever.
Anyway, I have anther blog to write before engaging in some quality family time and then home, early to bed for a Sunday visit for some more photons. At least the worst of the traffic is over for the year, so tomorrow I can sleep in till 6:)
If you’re still hear, I have had amazing support from friends, family, my social network and I am very grateful for it. I am also delighted that some of you have decided to get prostate tests, or other lumps that you think are nothing. One of the guys I chat with in the morning had a little lump on his throat that grew and his doctor told him not to worry about it. I lost a dear friend a few years ago who had a little lump on his face. It took his life.
I welcome your comments on my blog and when it comes to Christmas and presents, the best present of all (except for new guitars and a Corvette) is just being there and I really appreciate those of you who have been there for me. I’m also feeling for other friends at the moment who have much worse troubles than I do. It’s all relative. Do something nice for someone today, give them a smile, a hug, let them know you care. It costs nothing.