Will You Help Me Raise Funds for my Cancer Diaries Project? I’ll Play for You

This Sunday at 5 PM (NZ ST) I will be performing my last Live Stream with Boosted to raise funds for my HAG Project. Yep, it’s a fundraiser as I will explain below. Every penny helps. If I can raise $1,000 Creative New Zealand will match it!

You Have Cancer

These are words nobody expects or want to hear.

A few years ago, I was diagnosed with prostate cancer after a routine blood test. I had no symptoms, but farther testing showed I had several tumours. I’ve lost family members and friends to cancer and while I kept a brave face, there were times when I was close to rock bottom. When you watch TV shows like American Idol, you see people who have amazing journeys as a result of adversity and I wondered if I might have one of those moments.

The Cancer Diaries

The moment hasn’t come yet, but perhaps you can help me turn it into one, even a modest one, through this Boosted campaign.

I have written a series of songs about my journey, starting with the day I threw my director’s chair onto the carpet, smashing the chair and ripping the carpet. That motivated the first song in what I now call ‘The Cancer Diaries’. If I Could Turn the Table shares how I felt at that moment. Most cancer patients will relate.

A BHAG

I want to be able to create a legacy EP and series of music videos to tell the stories and donate it to the Cancer Society, with any proceeds going to them.

After I wrote the songs for The Cancer Diaries and looked at what I would need, it included everything from a jazzy bass to a gospel choir. I found the whole thing pretty intimidating and expensive. I, therefore, didn’t give the project life.

They say things happen for a reason. Maybe this is it.

Care to help me?

I am in remission and the last song in the Cancer Diaries turns this Boosted campaign into a BHAG (Big Hairy Audacious Goal). The song is called Dare to Dream. To make it shine, I need the backing of an inspirational gospel choir. In the song, I ask what remission actually means. I sing about writing a bucket list of meaningful things I want to see and do, and the song climaxes with a huge rousing finale.

I believe it will lift a lot of spirits and bring HOPE to people who have cancer or who have friends and family going through such a journey.

So how about it folks? Would you like to come on my next journey with me? Maybe help with a donation in honour of someone you care about who is on a cancer journey? Writing music is a cathartic process. So is listening and watching. I’m also keen to hear from anyone who can help with recording, backing music, video and of course that gospel choir.

Cost Breakdown

There are four songs on the EP. I estimate that studio recording of the first three will cost around $500 each. Recording the fourth song with the gospel choir is likely to be more in the range of $2,500 given the logistics. It would need to be recorded in a venue such as a church and will need a lot of gear and expertise. Mastering adds on around $800 leaving a couple of hundred dollars over for design.

These costs are based on not having to pay for backing musicians and choir. If I am able to oversubscribe, then it would be awesome to be able to give them koha too, especially in these difficult times when virtually no one in the music industry is earning a living.

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I Need Your Help With The Cancer Diaries

When I was told that I had cancer, I wondered if I might turn it into a moment. When you watch programs like American Idol, you hear of the hardship people went through, which motivated them to enter the competition.

One such ‘moment’ was that with my promotion of Relay For Life, I told my story about catching PROSTATE CANCER early, which motivated more than 20 men got themselves tested, which is awesome.

I started writing songs about my journey and decided to create an EP called THE CANCER Diaries and combine that with a music video, which would tell my stories of tough times and of hope. The final song, which is half-finished will culminate in a song called Dare to Dream,  which needs the backing of a gospel choir for the emotionally inspiring (I hope) finale.

The intention was, and is, to donate the finished product to the cancer society. I am hopeful that it will help other people on their journeys with cancer or in support of people with cancer, as it did me in writing and playing the songs.

Anway, life got in the way.

Since COVID19, the good people at Boosted have set up a program for artists, especially musicians and songwriters to raise funds and koha because they are unable to perform live during the lockdown period. I told them about my idea and they said that it sounded like a great project for a Boosted campaign.

So I have set one up, which you can find here. I will be performing live on Sunday evening at 5 PM right there on that page. Hopefully, it will go well. It took me most of yesterday to get my sound gear working for streaming. It’s probably been a year since I was last on Twitch or YouTube live.

So the plan is to finish the songs, record them in a studio together with a few volunteer musos and create The Cancer Diaries EP and video. I’m also hoping for support from other people who can help with video and especially with a gospel choir. Do you have one hanging around somewhere?

I also need your help to spread the word about the campaign which runs for 30 days from today, in any way or form that you can.

This is Intimidating! I Need Help! A Cancer Journey EP/Video to Help Others Sounded Easy.

The entrance to the radiation therapy room at Mercy Hospital, the start of my days for 8 weeks

Do you know anyone with cancer, depression or other debilitating conditions? Do you suffer yourself? Perhaps, like me you have a health condition yourself; and like me want to create something positive out of it, including coping strategies and fighting to find yourself back.

Would you like to be part of something that resonates with your values and help support me on this HAG (Hairy Audacious Goal)?

Yesterday I posted about Item #2 of 150 on my Life List inspired by Danny Dover author of the Minimalist Mindset, other books I have read like The Happiness Trap, podcasts like The Hidden Why by Leigh Martinuzzi, people I saw on TV programs like The Voice who had been on much tougher journeys than me and dared to dream of achieving lofty goals during the time I have been on my prostate cancer journey.

With the help of some good friends and family, some also still suffering from cancer I dragged myself out of feeling sorry for myself and decided that number #2 on my 150 long Life List of values based activities would be to created an EP and Video set of songs that were part of my catharsys and development, such that it will resonate with and help other cancer sufferers and their friends, family and support network.

I’m wondering if I have created a monster. How will I achieve this and 149 other things to boot, let alone find the energy for it, without detracting from my day job, which I can’t financially do without (and am passionate about)? How will I achieve this when I still frequently have to be woken up in the evening after my day at the office?

The answer, which is the same one as my cancer journey is that I can’t do it alone. In order to help other people, I need help from a team of people with a rich source of experience and some that can help with less specialist areas of support. Everything from project planners, musicians, vocalists, videographers to sound engineers, artists, production, social media, marketing and crowdfunding. Are you one of those?

I also just need supporters who can help spread the word, connect with members of the team, make cups of tea (or Texas Honey), run around after us and keep us on track and provide emotional support. We’ll need studio’s, technology, sound gear, meeting space, This is a pay it back or pay it forward exercise and should be a lot of fun.

Just since yesterday, I have already had firm offers of help from people, which is awesome and I will take them up on it. I’m going to need a pretty big team with a wide range of skills and it’s a labour of love, a not for profit venture.

Check out this short video with Danny Dover and see if it resonates with you. Is your life meaningful? For some of us it takes a reminder of our mortality and human condition to force change. Then you have to do something about it. You might like to take a similar journey and if you do, some elements may overlap. I’d love it to be this one.

So, this morning I started documenting what I am going to have to do in order to achieve this goal and it is huge. It could almost be a full time job in itself, which  is intimidating, but if I can find plenty of experts in different fields who will support me and donate time and energy; and find funds for the parts that I have to pay for, I’m going to make this happen. I’ve done it before with The Wireless Forum, Glenfield Music Centre, parents committees, sport club committees, Auckland ICT, SMEI International and more, all while keeping down a job. Anyway:

This is what I came up with for starters and it’s by no means complete:

Plan for Cancer Music EP / Video Project

1. Concept Document and elevator pitch
2. What help do I need at each phase of the project
   1. How can I even do it while keeping my job and energy?
   2. Project Manager
3. People or organisations that can help me
   1. People who have raised their hands
   2. Influencers
   3. People I would like to approach for help
   4. Mentors
4. Finance
   1. How much do I need?
   2. Where do I get it from?
5. The songs
   1. Finish them
   2. Practice them
   3. Write a story about each one
6. What do I need for each song
   1. Record basic demos
   2. Identify the sounds I want for each song
   3. What instruments / vocals do I want for them
   4. Find artists
   5. Find a producer
   6. Find a studio
      1. Engineer
      2. Mastering
   7. Record in conjunction with videos
   8. Video the entire process, not just the songs
7. The video/s
   1. What is the story for the whole production
   2. What is the story for each song
   3. Find a videographer
   4. Write each song story
   5. Find an editor
   6. Production team
8. Presentation
9. Publishing
10. Marketing
    1. Facebook Page
    2. Promo/merchandise
    3. Raising awareness
11. Launch event and concert gifting the outcome to the Cancer Society
    1. How would they use or benefit from it?
    2. How will it reach patients and their supporters?
    3. How will it endure

Want to be on the team?

Life List Item 1 of 150 – Go for 2,082 walks over 10 years.

Yesterday I wrote about being in remission and starting a Life List of 150 things to achieve in the next 10 years. 

Item 1 is something I have wanted for years and even considered developing myself. It is a GPS based solution that will allow me to track all the places I have walked  and motivate me to constantly find places I haven’t walked before by logging them on a map, preferably automatically from my iPhone.

I used to do ocean kayaking and used a paper map book. Every time I went out, I did a new stretch of coastline and marked it with a highlighter. Easy to do for sea and tidal estuaries, but not for roads.

So the List Item is ‘Track everywhere I walk and aim to walk somewhere at least 4 days a week over the next 10 years’ That works out to 2,082 walks. I entered it into my iPad app called Make It Happen 2012, which doesn’t seem to exist anywhere or I would send you a link. It looks like this: 

I woke up yesterday thinking maybe I should start a crowdfund and get something built and then spent an hour or so searching for apps and eventually found Move which I installed on my iPhone. It tracks all sorts of things including walking, cycling and driving automatically. So that motivated me to do walk number one which was to the local grocer and back with my wife. We did just over 6,000 steps. The app showed where we had walked, not super accurately, but good enough. 

I then had to find a way to upload it onto a website so that I could see where I have been and plan new walks, because the app only show each individual link. I found MOVE-O-SCOPE which is now owned by Facebook and connected the two. I thought I had finally found my solution, but now I’m not sure.

I connected them as per the instructions and found loads of driving data from 3-4 years ago and also walking data from 2013 and 2014 but not the walk I did yesterday, so I’m hoping this does actually work, or I will be very disappointed. There is a huge market of people that want this functionality and it seems like it is all here. Maybe it needs a week of data before it shows anything, but even the slide only goes to 2014.

So I have the app on my mobile, but it’s no use to me without the visualisation because I can’t see on it where I have and haven’t been since 2014. Hopefully this will get sorted because that was still the key.

Meanwhile I do have my first values based item on my Life List, which is to exercise and look after my body, whilst also enjoying being outside and part of my surroundings. I’ve sent them a PM on Facebook and hopefully they can sort me out because there doesn’t appear to be anything on their website.

If anyone reading this can help or point me to any other service that does what I need, I’m keen to hear from you.

 

 

I’m in remission, Life List and moving forward

So I’ve just been told that I am in remission:) My first question was, what does that mean? I always thought it meant something like being cancer free, but my oncologist said that once you have cancer, you are never cancer free.

So what does it mean for me? For now, no more drugs and tests for 3 months (that’s the second lot of 3 months now) and that in itself is a big relief. I’m still getting my head around it.

I don’t want to write about my cancer as such other than a brief update and perhaps to help others on a similar journey. My fatigue is way better than it was and I am able to stay awake longer than I was, almost normal, although I still nod off if I am in an easy chair, but I am no longer fighting to stay awake at 6:30 PM, (every night) or playing Candy Crush to force myself to stay awake.

I do still tire easily, especially on long work days or trips, but it is getting easier.

I am still not producing cortisol, which is really interesting when you are on a rollercoaster that suddenly races off at a great rate of knots and everyone around you screaming and you’re thinking “hmm this is entertaining”. Or lying upside down in an ocean kayak, in a current thinking “This is interesting, I suppose I should pull the ripcord on my sprayskirt and get out so I can breath”. But I am aware of where I am at and much more cautious when it comes to driving if I am tired, or not looking at my mobile while I walk on the footpath and especially crossing the street with so many red light runners (3 just yesterday as I was going to buy some sushi for lunch).

I meditate every night using the Headspace app, which has been very helpful, especially with sleep and the way I respond to situations. I’ve been doing a lot of work on my values and what is important to me, which leads me to my Life List.

I am listening to The Hidden Why podcast, by Leigh Martinuzzi frequently (amongst many others), which I recommend, he’s pretty good for an Aussie (sorry mate) and a prolific poster and traveller on the topic of Why, which is pretty much the key to everything, right?

Recently he interviewed Danny Dover who wrote The Minimalist Mindset, which I am currently reading. I got it for a minimalist cost on Amazon for Kindle, but I’m tempted to buy a hardcopy as well, because it is the sort of book you want to read with a real highlighter and Post-It Flags, rather than virtual ones, because they are easier to use. In fact I might buy a few copies to give away to friends.

So I’ve had a Bucket List which I revisited since I was told those three words ‘YOU HAVE CANCER’ and some of the things I wrote about were things I wanted to have, like a National resonator steel guitar, which really doesn’t matter to me, and a Corvette, which does.

But what Danny did to help himself out of severe depression was create a Life List of 150 things he wanted to complete within a 10 year period and they are values focused and I was inspired to do that. So I officially started that list today and am part way through reading his book.

I’ll blog about the Life List separately because it will be part of my process and I hope it will help other people to focus on what matters to you rather than ‘stuff’ to have or own. I’m also going to work on it with my wife, although there will be things that matter to us and things that matter just to me, so there will be overlap.

It’s a shame that it takes something like having cancer to wake us up to put more effort into life, not that I haven’t put a lot of effort in, but there are many things I could have done better, and many different paths I may have chosen. The important thing is my focus on a future based on my values and I am very clear on what they are. So today on 8 August 2017, I am starting my 150 item Life List of things I want to complete by 7 August 2027.

I have started item 1 and if you want to know what it is, watch this space. It’s pretty cool IMHO.

I got Chastised for Owning a V8 Last Week

I felt like I was being made out to be a bad person and it shocked me. I’ve always considered myself a green person. I have planted tens of thousands of trees, lobbied for feed-in tariffs to make it attractive and economical to get the masses to install solar power. I’ve encouraged ride-share systems and spend a lot of my working time encouraging people to use public transport and to reduce the impact of congestion. I point out to people when their car or truck is blowing soot from the exhaust pipe and if I pick up rubbish that others have thoughtlessly discarded.

Since I was little I always loved Corvettes. As a boy i would watch them on TV and see the odd one in real life. As an adult I had a business associate who owned one while I just had a replica model.

The colleague who castigated me used to work for a car manufacturer and has a passion for motor vehicles and motor sport and maybe he was just envious of me that I have a sports car, but it made me feel bad. It shook me, perhaps because the car is an indulgence.

I didn’t bother telling him that I have cancer and that it made me decide to do a few things for myself and my family that were on my bucket list, things that like most of the people I know, I never expected to achieve. Anyway, now when I drive my 350 Chevrolet, people give me the thumbs up, kids stop and look at it as  drive past as I did so many times when I was little and I see big grins light up on their faces, just like I did. People compliment it and I feel like they feel happy for me in gas stations. They don’t know my circumstances and might think I’m rich. I’m not. The only new vehicle I have owned in my entire life was a no gear pushbike.

I have my dream car and I spend as much time cleaning it as driving it, which I find therapeutic (it helps me take my mind off my next lot of tests), while listening to business coaching, self improvement and music podcasts. It’s in great condition, doesn’t blow smoke (and neither do I), I never deliberately speed (in fact I am helping to test a green driving app) and  so the engine is never working hard, it is in fine tune so there is very little pollution, in fact I think it drives much cleaner on high octane petrol than the average car let alone the diesel soot smeared black smoke spewing trucks I see delivering frozen food to retailers.

I have spent half of my life working in voluntary unpaid positions after work, from boards and committees including as a Civil Defence Rescue Team Leader, Chair and committee member of boards including a music centre that has taught thousands of children to play music on instruments they couldn’t afford to own, volunteered in a food centre providing vegetables at farm cost to people who couldn’t afford to pay retail, fund a guide dog, support charities and worked hard all my life.

I indulge myself a little when it comes to my guitars and continuing to lean music and have done some travel (most of it on business with very little time for myself) and I consider myself to be a good citizen. Don’t get me wrong, I’m far from perfect and have room to be a better person, but I do care about my community and my environment.

But I do have cancer and I do have a bucket list. I thought I’d wait until I retired before I went and had a but more fun and I’ve recently been pointed out that I am no longer insurable for health and life. Obviously they consider I have a long life span ahead! I haven’t given up on that myself.

I do my best not to judge other people and I’d like to suggest that people who are quick to judge or try to make me feel bad for finally owning my (second hand) dream car should have a close look in the mirror. I hope they never find themselves in a similar situation to me.