This is Intimidating! I Need Help! A Cancer Journey EP/Video to Help Others Sounded Easy.


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The entrance to the radiation therapy room at Mercy Hospital, the start of my days for 8 weeks

Do you know anyone with cancer, depression or other debilitating conditions? Do you suffer yourself? Perhaps, like me you have a health condition yourself; and like me want to create something positive out of it, including coping strategies and fighting to find yourself back.

Would you like to be part of something that resonates with your values and help support me on this HAG (Hairy Audacious Goal)?

Yesterday I posted about Item #2 of 150 on my Life List inspired by Danny Dover author of the Minimalist Mindset, other books I have read like The Happiness Trap, podcasts like The Hidden Why by Leigh Martinuzzi, people I saw on TV programs like The Voice who had been on much tougher journeys than me and dared to dream of achieving lofty goals during the time I have been on my prostate cancer journey.

With the help of some good friends and family, some also still suffering from cancer I dragged myself out of feeling sorry for myself and decided that number #2 on my 150 long Life List of values based activities would be to created an EP and Video set of songs that were part of my catharsys and development, such that it will resonate with and help other cancer sufferers and their friends, family and support network.

I’m wondering if I have created a monster. How will I achieve this and 149 other things to boot, let alone find the energy for it, without detracting from my day job, which I can’t financially do without (and am passionate about)? How will I achieve this when I still frequently have to be woken up in the evening after my day at the office?

The answer, which is the same one as my cancer journey is that I can’t do it alone. In order to help other people, I need help from a team of people with a rich source of experience and some that can help with less specialist areas of support. Everything from project planners, musicians, vocalists, videographers to sound engineers, artists, production, social media, marketing and crowdfunding. Are you one of those?

I also just need supporters who can help spread the word, connect with members of the team, make cups of tea (or Texas Honey), run around after us and keep us on track and provide emotional support. We’ll need studio’s, technology, sound gear, meeting space, This is a pay it back or pay it forward exercise and should be a lot of fun.

Just since yesterday, I have already had firm offers of help from people, which is awesome and I will take them up on it. I’m going to need a pretty big team with a wide range of skills and it’s a labour of love, a not for profit venture.

Check out this short video with Danny Dover and see if it resonates with you. Is your life meaningful? For some of us it takes a reminder of our mortality and human condition to force change. Then you have to do something about it. You might like to take a similar journey and if you do, some elements may overlap. I’d love it to be this one.

So, this morning I started documenting what I am going to have to do in order to achieve this goal and it is huge. It could almost be a full time job in itself, which  is intimidating, but if I can find plenty of experts in different fields who will support me and donate time and energy; and find funds for the parts that I have to pay for, I’m going to make this happen. I’ve done it before with The Wireless Forum, Glenfield Music Centre, parents committees, sport club committees, Auckland ICT, SMEI International and more, all while keeping down a job. Anyway:

This is what I came up with for starters and it’s by no means complete:

Plan for Cancer Music EP / Video Project

  1. Concept Document and elevator pitch
  2. What help do I need at each phase of the project
    1. How can I even do it while keeping my job and energy?
    2. Project Manager
  3. People or organisations that can help me
    1. People who have raised their hands
    2. Influencers
    3. People I would like to approach for help
    4. Mentors
  4. Finance
    1. How much do I need?
    2. Where do I get it from?
  5. The songs
    1. Finish them
    2. Practice them
    3. Write a story about each one
  6. What do I need for each song
    1. Record basic demos
    2. Identify the sounds I want for each song
    3. What instruments / vocals do I want for them
    4. Find artists
    5. Find a producer
    6. Find a studio
      1. Engineer
      2. Mastering
    7. Record in conjunction with videos
    8. Video the entire process, not just the songs
  7. The video/s
    1. What is the story for the whole production
    2. What is the story for each song
    3. Find a videographer
    4. Write each song story
    5. Find an editor
    6. Production team
  8. Presentation
  9. Publishing
  10. Marketing
    1. Facebook Page
    2. Promo/merchandise
    3. Raising awareness
  11. Launch event and concert gifting the outcome to the Cancer Society
    1. How would they use or benefit from it?
    2. How will it reach patients and their supporters?
    3. How will it endure

Want to be on the team?

Life List #2 Record an EP and Video of my Songs about my Cancer Journey


I know you are a caring person wanting to make a difference like me, or you wouldn’t be reading this blog. I’m looking for advice and assistance on this project and I want to gift the results to the Cancer Society so that many people can benefit from it.

Music is a great healer and I used it as one of the tools that helped me and continues to help me through my journey. When I first was told “You Have Cancer” and got past the initial shock, I watched shows like The Voice and saw the stories of people who had turned horrific times in their lives to good purpose, wondering what did it take for me to do something positive and values driven.

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Where we leave our clothes when we go in for radiation treatment

I decided I wanted to do something too, which started with setting up the Facebook page Musicians with Cancer and other Maladies, I also wanted to try to do something really positive for other cancer patients and their families and friends.

 

So my Life List goal #2 is to complete an EP and music videos to help tell the story of my journey in terms of a cancer patient that may help other people relate to this horrible illness.

It’s 24/7, it’s scary and in many cases results in anguish, fear, depression, pain and death. The story isn’t unique, it applies to other conditions too like dementia.

Last night I watched the movie ‘Glen Campbell I’ll Be Me’ on TV and had tears in my eyes throughout the whole movie and my heart goes out to people suffering from dementia, which our family is also dealing with.

One of my songs for the EP is called “Who Stole My Words” which was about an experience I wrote about recently about falling out of an ocean kayak and due to my condition wasn’t able to come up with simple words like current and tide after I swam it to shore, not having the strength to get back in because I am not producing cortisol (i.e. no adrenalin). For a wordsmith, not being able to recall simple words is pretty scary.

So my challenge is that I need to fund this work and then make it available at no cost to people who are going through the same experience, because even with insurance, having cancer is very expensive and many people have to sell their homes or spend their life saving to help pay for their treatment or even to travel for treatment if they don’t live in a town where it is available. We had to spend a 5 figure sum to top up the gap for my treatment to date, so I know what it’s like. So I’d like to gift the album / video to the Cancer Society when it is complete.

I’m going to need additional musicians, possibly a backing choir for one of the songs, a videographer, editor and more people to help me. I’m going to need a studio, a sound engineer, a cast of several people and then there’s production and distribution. It’s pretty scary.

I’m keen for advice and help. First of all, where do I go for money? I’m thinking about whether to use New Zealand’s ‘Give a Little’ service. To raise funds because this is a charitable exercise. The finished product will be gifted to the Cancer Society and anyone who can benefit from it for free. There won’t be any profits.

Then I need a bit of a team to help me make this happen. Can you help with advice, or would you like to join the team? I can write the songs and I want to perform them with various artists, but that’s about the limit of my expertise.

So will you help? I need people and I need advice. You can contact me via Twitter Facebook by joining the group Musicians with Cancer and other Maladies, LinkedIn or Email.

 

Meresha – A Rising Star Enters the Dreamland


Meresha1Have you heard of Meresha yet? Let me introduce you. It seems like many years since I first heard Meresha sing, but given her age it can’t be that long ago. I feel like I’ve watched her grow up from a young bubbly teenager (with a mature musical spirit) to a powerful multifaceted musician, singer/songwriting woman, and that we are friends even though we’ve never met in person.

Meresha BillboardI knew instantly, seeing her perform (online) that she was going to be a superstar. She has a voice to die for, passion and personality that you can’t help but get swept up in, energy to burn that seems endless, a vision for what she wants and humility that keeps her grounded despite amazing successes on Billboard, MTV and many other platforms.

Meresha

On June 12th she is launching her latest EP called ‘Enter The Dreamland’ and I’ve had the privilege of listening to it pre-release. The title song opens the door to the rest of the EP with a wonderful hook and reminds me of Alice in Wonderland, except that she takes us with her. Listening without the great video it is the sort of song where you can put your own journey or story into it and think “this is about me” and then with the video, you have another adventure to enjoy.

I’ve been saying for a while that it’s time for the comeback of concept albums. When I saw Carlos Santana perform again a few weeks ago and he went from Black Magic Woman to Oye Como Va as people remembered off the Abraxas album, the crowd roared with approval. They collectively remembered and appreciated the sequence of songs, where today so often we listen to one artist, one track, and move on to the next artist, especially with services like Spotify, where a search will find some of Meresha’s songs. I’m personally completing the third song of a concept  album I am writing about my cancer journey, with my target audience being people with cancer and those close to them, but I digress other than welcoming the approach Meresha has taken with this EP.

Enter The Dreamland really feels like a concept album and that we are being taken on a journey. My favorite song at the moment is Jungle Potion. It shows off her range and has a rich fusion of Soul and Pop. I really like the brass, the bass and other instrumentals that support her vocals.

Violet Night starts and ends of with that vinyl sound many of us grew up with or are discovering with its re-emergence and is a track that has great rhythm and joy as a dance track superbly presented as a climax but isn’t the end of the album, which comes with Lights Out, a great way way to close, telling you to step outside your mind. The album may be over, but it still resonates.

I’m confident there are hit singles in this album and what is really cool is that it will have wide appeal to different audiences. I can’t wait to see the final cut of the video and perhaps more videos which really illustrates how much Meresha loves what she does.

So watch this space and sign up for updates and get a free download of Lemonade City and get ready for the latest EP from this great performer and recording artiste. I don’t normally right reviews of music, but I am really excited about this talent. I love to see the sort of commitment that she puts into her craft. Music is hard work and making it in this industry to a point where you don’t have to wait tables or do something else so that you can do what you love is not something many people get to enjoy.

Just as a footnote, while you are on her website, check out her videos and you will see what I saw, joy, passion and youth, combined with vocal control and skill. If you like what you see, please support her and buy the album.

Helping Soldiers with PTSD through Music


As you know, a few days ago I set up a new Facebook page called Musicians with Cancer and other Maladies. It is about people helping other people. Today I came across a group that help soldiers with PTSD by using songwriting to express themselves and tell their stories in a trust environment, which is helping a lot of people, even those who are not musical themselves, or don’t realise they are.

Several years ago I wrote a song called Another Stretch in Iraq. You can hear a demo on my Reverbnation page. It was motivated by a newspaper story of a service woman who came home looking for some love and normality only to find that her man had left her for another woman. A common story sadly.

I joined a military blogging (milblogging) site and spent a good year or so talking to military personnel, mostly serving overseas at the time to get a feel (as much as that is possible, given that family members who served almost never spoke about their experiences when a civilian was present).

They trusted me and I learned a lot about their lives, their hopes, their agonies in losing brothers and sisters, general life and the isolation from their families where their fellow soldiers in fact became their families such that many could not and still can not adjust to civilian life without their brothers and sisters from he service.

When I was in Orlando some years ago, I played a couple of sets at a biker-friendly bar in Longwood and my song Another Stretch in Iraq was one of the songs I played with some great backing from the house band. I wish I had taken some photos because it was the classic bar with 30 Harley’s in a neat row out front, sawdust on the floor, the sort of place that Kiwis only see on movies and TV shows and that the cab driver thought I had no place being until he saw the friendly bear hug greeting I got from the woman who ran it.

After finishing the song a group of 6-foot something burly men came up to the stage. The biggest of them all came up to me with tears in his eyes and I thought I was about to become roadkill. He and his friends looked me in the eye and then he shook my hand and said I took him right back to the theatre at Desert Storm. He re enlisted twice and his son had just left for Iraq a week ago.

It was so rewarding to me that I had captured the emotions and environment with integrity and that the song gave them some comfort. I haven’t worked harder on a song and would love to record it professionally. It is on Reverbnation as a free download and is also on a couple of sites of free MP3 downloads that is made available to all serving US military.

Back to the Facebook page. There are thousands of returned servicemen in dozens of countries who suffer from PTSD. They come from all walks of life and many of them play musical instruments, or used to. Many of them can no longer motivate themselves and need a hand. Some of them join groups like the one in the video above. Many will not join groups, either because they can’t or won’t ask for help, because they don’t want to appear weak, or because they are still in service and don’t want to jeopardise their careers by showing weakness.

The concepts in this Facebook page mean that all they have to do is talk to a few friends and family that they are close to and trust. Then all they need to do is ask for a little encouragement, it’s as simple as that. For those who wish to or are able to contribute stories, I am hoping they will join the Facebook Group because it can only grow and flourish if they know about it.

I’m hoping that if you know people like that, you will share this post or the link with them so that they can be made aware that help is available and whilst it is not easy as it sounds, with a little help from their friends it can happen.

As John Lee Hooker and my idol Carlos Santana sang, Blues is a Healer. It heals those who play it as much as those who listen to it. If you can help someone pick up their instrument, or raise their voice and break the silence, you can have a profound influence on people’s lives and it can be as simple as my mate Rob sending me a TXT message saying “pick that gat up and play for 10 minutes man.”

If you know of anyone that could benefit, please share the Facebook group with them and perhaps join us yourself. My thanks on their behalf.

I need a little help from my friends


Mercy ScannerSince I was told those words “YOU HAVE CANCER” I have been wondering how I could turn it into a positive. I’ve seen so many people on TV on shows like The Voice and they all have a story of troubles that they turned into amazing success stories.

It’s taken me two years to come up with a HAG. It’s not fully fleshed out yet and it is full of challenges and I’m hoping for my friends to help me out.

I’ve always considered myself a survivor, but I’ve struggled at times and often feel embarrassed when people suffering 100 times more than I am, try to make me feel better.

I’ve been reading an awesome (but huge as friends and fellow sufferers I have bought copies for) book called SuperBetter by Jane McGonigal which is all about using gamification to help yourself deal with chronic illness and trauma. Between that and two sensory deprivation floats over the last 2 days at FloatCulture in Auckland, I’ve come up with 4 ideas. I will flesh them out later, but I’m looking for a little help now and a lot in the future and I’m hoping you will find a way to join me.

Another Stretch in Iraq

  1. I am a singer songwriter, or at least I was before I got sick and I want to be again. Over the last 2 years I have struggled to play my guitars. I typically pick one up, play for a few minutes and put it down again. I struggle with chronic fatigue. In recent times I have often had to go back to bed during the day and even if I have slept most of the afternoon, I’m likely to be asleep again around 7:30-8PM. Here are some things I want to do:
    1. In about 9 months I want to do a gig somewhere with great acoustics, playing my originals (including new songs about dealing with cancer) with some backing from other musos.
    2. As per the SuperBetter program, I need 2 or 3 people (close friends) to check up on me and help me stay on track. That might be texting me or giving me a call each day and asking how my music is going to make sure that I stick with it, even if it’s only for five minutes.
  2. I’d like to help other musicians with cancer who feel the same way and would love to get back into their music but are struggling like I have. It might be that I can put together some sort of guidelines (everyone is different and it isn’t paint by numbers) based on my own experience, such that they can come up with their own model and get help from their friends to achieve the same results.
  3. If  we can achieve that, wouldn’t it be awesome if we could put together a gig/s of songwriters and musicians who have cancer or are in remission around New Zealand? Wouldn’t that be something amazing to aim for!
  4. I need a lot of help. At the end of this year I had most of the last 2 weeks off sick because of fatigue. I spent most of that time sleeping day and night. I need my job (both because I love it and because I need the income) but I’ve been struggling to front up. I need help putting together and maintaining a website or Facebook page to tell people about this initiative. Bottom line is it is going to be a struggle just for me to play every day (and keep my job), let alone grow this thing into something that will give energy and bring a spark back into people’s lives who are suffering and struggling just to get from one day to the next.

So what do you think? Is this a good idea? Do you know anyone who is a musician with cancer (or in remission) who has struggled like I have to motivate themselves and get back into it? When I have been able to play and write, like the song I wrote, which I blogged about here in a Cancer Meltdown,  it was extremely cathartic. Music is a healer.

I will be approaching a few close friends directly to assist me in my immediate journey to play every day. But for the other things I can do with a lot of help. Do you know songwriters and musicians with cancer? Do you know people who want to help them? Can you help in some way?

Can you please share this post with people who you think might be interested?

I’m going to try with a little help from my friends, actually a lot of friends if possible and friends of friends, because it’s 10 in the morning and I’m already tired. But I am going to play today.

Thanks for sticking with me. There is a lot of work to do and I can’t do most of it. We all know music is good medicine and can help drive a positive attitude. A lot of beating cancer is about attitude.

For now you can contact me through my blog. I don’t want to put my email address on here and attract phishers. Since I wrote this blog, I now have a Facebook group called Musicians with Cancer and Other Maladies. Please check it out and share the word.

Again, please share this so that we can help other people in a similar situation to me. Thanks a million.

 

3,000 Teen Deaths from Texting and Driving


A study done by the Cohen’s Children’s Medical Center in New York, revealed that drinking and driving resulted in the death’s of 2,700 teens in the US, compared to 3,000 from texting and driving.

How about a quick, honest but anonymous poll:

I was listening to the Peggy Smedley Show this morning while cleaning the bathroom and enjoyed some great interviews in her Distracted Driving Month series. The topics were great, everything from the value of reversing cameras through to why car manufacturers are putting social media technology into their cars.

Anyway, a subject that peaked my interest was comparisons of factors impacting on or causing accidents.Talking or texting on the phone is one that that police and others who examine the results of motor accidents look for by default these days.

Peggy quoted a study (can’t remember which university) where they found that people with a blood alcohol level of .08 performed better behind the wheel than people who were using their mobile phone. If you want more detail, listen to Peggy’s back shows on her website or on iTunes, the latest ones being about Debunking Myths about Cellphones and Driving.

Just putting that into context, most people think that dialing a number (I only dial on my hands-free via voice commands with  Siri, or not at all these days) or sending a txt isn’t a big deal. I see ‘professional drivers’ holding their mobile up to their ear pretty much daily. One would assume they are sober, and mentally alert. I was also going to say relaxed, but if they were relaxed, they probably wouldn’t feel the need to take a personal risk, let alone knowing they are breaking the law; so you could surmise that they are already distracted and their minds are not on the road. Yet the study showed that drivers using their mobile were more distracted and less able to perform than those who were at a blood alcohol level where, according to a Blood Alcohol Chart on Wikipedia, they were at the upper range and would be experiencing:

  • Impaired reasoning
  • Reduced depth perception
  • Reduced peripheral vision
  • Reduced glare recovery; and behaviors including
  • Blunted feelings
  • Dis-inhibition; and
  • Extroversion

SheepI really enjoy listening to music when I drive and I have a full subscription to Spotify. I love it. My iPhone FM Transmitter sends it to my car stereo, while charging my phone. I like that. I have been guilty of occasionally looking down at my iPhone for the name of an artist or to skip a track. Our maximum legal driving speed on motorways and highways in New Zealand is 100kmph. Often that is on highways where kids play or cycle on the side of the road. All it takes is for a ball to bounce onto the road, or wandering stock to change things in an instant.

So I thought I’d have a look at the numbers and went to the Unitarium online speed calculator. I worked out that if my eyes were on my phone for 3 seconds (doesn’t sound like much) whilst driving at a legal 100km per hour, my eyes would have left the road  and I would have been oblivious to what was happening on it for 30 meters!

Have you ever done that?