Affiliate Marketing That Works While I Wait For my Back Surgery

If you know me, you will know that for the last year, I have been off work with a back injury and I am waiting for back surgery after having tried everything else. ACC isn’t keen to pay for it and I am now waiting for a Review with them and also for an appointment with an Orthopedic Specialist at North Shore Hospital.

I was referred there on 9 April as Urgent and when I rang last week, they said I would be seen within another month or two and confirmed that they do of course have cancellations. I pointed out that I am close by and ready to come at a moments notice, having been off work for over a year now. You can check out the Back Story on my Back here.

I have to sit on a cushion with a wheat bag behind my back

So what have I been doing this last year? Stretching,

Hanging upside down is great and then gravity comes back

exercising, doing aqua aerobics, hanging upside down, going to specialists, having scans, steroid injections, floats, walking, sitting, stretching, working 6 hours a week and waiting for someone to approve the surgery that was recommended by my specialist.

Now if you know me, you know I am not one to sit down. I look for opportunities to keep busy.

All this time off made me think about retirement. No I don’t want to retire for many years yet. I’m anxious to get back to work full time which I should be able to do, 6-8 weeks post surgery. But when I do retire, I sure don’t want to rely on the pension to give me lifestyle.

I decided that Affiliate Marketing was the way to go. I tried several options as I will outline below, and I have come to the conclusion after some expensive trials with other vehicles, that Wealthy Affiliate is the way to go. It is simple, the education is awesome, and I am well on the way to building something that will provide me with an income in the future when I need it. More on that below. But if you want a shortcut to check out why I chose this without reading on. Click here.

I’ve often thought about being able to have a passive income that would provide for my future and I’ve tried various things. Long ago my wife and I were Amway members and we developed a large downline. We even got to the famed 21% but it was incredibly hard work and we could see it really wasn’t for us, especially in New Zealand where there were not that many products and whilst the training and atmosphere was awesome, the income wasn’t.

I wrote another book which I published in December after a great many reviews, because I have been taking fairly large doses of painkillers every day. but I got there.

I planned to write and sell a course for first home buyers via an organization called Clickbank. I spent a fair amount of time and money after signing up to Clickbank University and learned quite a bit about Affiliate Marketing, but I felt their system, based around selling courses was a bit limited on its own.

Then I found that the target market for my book, young first home buyers, don’t really like to read. So I set off to create a YouTube video version of the book. You can find it here. It’s great free information.

Through the course I also set up an email list on aWeber. But this also required cost and a lot of work and I decide that people looking to buy their first home, are not looking for training even though in my opinion they really need it.

So after many months, I still wasn’t getting anywhere, until… I discovered Wealthy Affiliate. What was great about it was that it was a no nonsense, paint by numbers course that had you finding a niche, researching it, buying a URL, searching keywords, doing SEO, setting up a website in no time flat and before you know it, you are almost ready to start generating an income.

I just wish I had found this a long time ago. Now this is not a get rich quick scheme. I don’t think anything like that even exists, but without any knowledge of current web set up, I created Guitar Love. This is a website that is going to entertain and educate established and learner guitarists about everything from how to pick a guitar, accessories that make playing fun, writing and composing songs and music and much more. I will share affiliate links to products that I love, help them get good deals and get a clip of the revenue for my trouble.

I just can’t tell you how easy it was. I’m not saying it isn’t a lot of work, but any business is. I’m not looking to make money right now, but I could if I wanted to. I’m looking to build something that will give me a better lifestyle in future years.

I have always wanted to find a way to do what I love, writing, blogging, making music and just couldn’t figure out how to do it. Wealthy Affiliate has an awesome community and we all help each other out. It has gamification, it has paint by numbers, it has what I wish I had found years ago.

So, do you want a little or a lot more income now or in the future? All it takes is a little desire and a little work. I’m into it and I just wish I had found it sooner. If you are looking for a way to set up your future like I am. Just click on the banner below and check it out.

If you know anyone else that is struggling to make ends meet, a solo parent, perhaps someone semi retired, a student, or like me, wanting to do something for yourself while recovering from an injury or illness, please share this blog or a link with them. The link has a really low cost introductory offer which I and most people used to determine if the system is as good as it sounds.

Any questions, just leave a comment, or if you know me personally, give me a yell.

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A Few Hours of Bliss at Float Culture

I arrived in an addled state this morning at 11AM for my 10AM appointment for a float and massage at Float Culture. It was in my diary for 10AM, but somehow that’s when I had booked my taxi to pick me up. I only got a few hours sleep last night, that’s my excuse and I’m sticking to it.

When I got there, they told me they had cancelled my appointment because I hadn’t turned up, even though I had confirmed this morning. I just tapped the button, not even reading it, or I would have realised and called for an earlier cab. How often do you do that with EFTPOS or paywave, just hit accept without looking at the price?

Anyway, after my heart dropped, it turned out I was in luck and despite messing everyone around, they were able to fit me in. They asked if a Pod was OK rather than one of the newer ‘rooms’. When I’m floating on Epsom Salts laden water in the quiet and dark it could be a farm water trough for all I care.

I keep a pain diary so that I can discuss my physio treatment, exercises etc for my back injury with the team of people assigned to restoring my health and getting me back to work. (3 bulging disks pushing against nerves which has kept me off work for 6 months) The injury has me at a pain level of 6-7/10 most of the time and that’s with some hard hitting pain medications. This morning I was up at 2AM (6/10) 3-4AM (7/10) and up again at 6AM with 6/10.

Once I was in the pod, for some reason I struggled to keep my mind quiet and even using breathing techniques, my brain would be off on some tangent before I could count 5 breathes in and out and the hour was over all too soon, BUT I could barely feel my back when I got out of the tank for a shower and I still had a massage to come.

Now I’m no biochemist and my understanding was that endorphins are what used to give me the bright colours and the grin that wouldn’t stop, back before I had radiation therapy, and enkephalins are the body’s natural painkillers, but it seems they both come from the same part part of your brain. I didn’t have the buzz, but I also didn’t have the pain!

Anyway I went straight from the tank to the massage room for an hour of total relaxation.

At the end Kim said to take as long as I needed. I could have quite happily gone to sleep at that point. Well when I did get up from there, I was pain free, I was able to stand up and with a bright red rosy face, I felt the way you probably take for granted. I was able to put my track pants and shoes on without grunting and groaning. I was even able to stand up, leaning on a counter to look out the window watching for the cab to arrive without any pain.

Now to be fair, after the taxi ride home I was up to 3/10 and now I’m now at 4/10 but that’s still a lot less than 6-7. It will go back to 6-7, but I can’t describe how good it felt to be pain free without the use of drugs. No other treatment other than morphine has been able to do that for me in the last 6 months.

If you have any sort of chronic pain injury, I strongly recommend not just having the float, but combining the two. If you think how relaxed you feel after a massage, imagine having the massage when you are already totally relaxed. I pay a membership subscription and occasionally I get given a voucher for someone to get a free float (does not include a massage).

If you live in Auckland, leave a comment and I’ll use some random method to let someone try it for FREE. Find out more about floating on their website. I’ll pick one person on 1 December. Think of it as an early Christmas present. That’s worth $100, but I’m sure you’ll agree the outcome is worth much more. Do remember it is sensory deprivation so if you get claustrophobic, this is not for you.

Meanwhile if you’re still here, I’m going to get into the Delorean and zip back to 4 October 1987 for my 3rd float. You can go back to my previous blog for the 2nd one.

Now just to set the scene, I was working for a company that was bleeding money for no obvious reason (yet). I was making sales for 6 figure sums of money, delivering cheques in some instances, but somehow even though they had been cashed, they never seemed to reach the company bank account. It got worse from there when not long later I arrived at work on my way to a sailing weekend on the family yacht, to find out why my pay hadn’t been deposited. I met the receivers who were in the processing of padlocking the office door. To make matters worse, a certain person (not me) had taken a first class family world trip on my company credit card (note, if you get one of those, you are jointly and severally liable for any debt) and the bank took me for the money. I ended up losing just under $40,000 and I was just an employee and had to refinance our home. Take it that I was a little stressed.

So, off to the Belleview Clinic in Mt Eden on 4 October. This is what I wrote:

“My third float. Nothing spectacular. I didn’t feel any more relaxed, or different. The float itself was unremarkable, anticlimactic. Yet as I sat down to relax afterward, I felt a vibration throughout my body and a general sense of well-being. Not euphoric, but content.

I concentrated some energy on relaxing my jaw, probably the last place where I still felt stress from clenching my teeth.

Driving home I felt rag-doll relaxed, although I still felt fragile in the face of pressure, real or imagined. (Note at this stage I wasn’t aware the company I worked for was being embezzled, I just knew something was seriously amiss), It is difficult going from a cocoon to a demanding environment. I felt like I didn’t want to let go of the comfort of zero responsibility that I enjoyed in the tank.

The current edition available from Amazon

My general bearing and outlook was positive and I could see many parallels to other relaxation methods like meditation. I felt as though I was taking a short cut. It was interesting that subsequently I read similar comments in ‘The Book of Floating‘. It has been compared to many ‘laboristic’ relaxation methods including Yoga and acupuncture. 

There is a notebook of floater’s comments, a visitors book in the lounge at the clinic. Every comment is positive. Most people are there to solve personal problems and seem to want to apply mystical meaning to the amazing results. That’s not surprising off course when their bloodstreams are getting a rush of natural brain produced opiates.

I found myself holding back from conclusions, but was keenly looking forward to moving beyond release of tension and balancing myself, to getting creative with the tank and finding new ways to benefit from sensory deprivation. 

I subsequently did that and had all sorts of experiences and experiments that you can read about in future blogs about these awesome tanks. Bookmark or subscribe to this blog to find out more. If it’s boring you to tears, sorry, this is my personal soapbox and like the woman who was offended by the 2 minute song, based on the doppler effect, that I performed in one of my sets at the Parnell Rose Festival many years ago, called What I Like About Reefton. She stood up and said ‘That’s not very nice” and left her seat in the audience. If you want other types of blogs feel free to visit one of my other blogs like The Future Diaries , Location Is Everywhere , First Home Buyers Training or SoLoMo Consulting.

 

Lingering Effects from my Second Float in 1987

Following on from my blog on my second float, way back all those years ago, I made some notes four days later. Take them as you will. From 29 September 1987:

“It must be having an effect. Today was an extremely hectic day. I was writing proposals and attending meetings at a frantic pace. I was suffering from heartburn (turned out that I had a duodenal ulcer) by midday and finding it almost impossible to unwind.

Yet, although I am exhausted, my jaw is tender from clenching my teeth and I have a slight headache and despite the issues going on behind the scenes at work, I am feeling unusually cheerful.

I also feel as though my head is clearer, memory access improved and my thinking power is enhanced.

I will treat these impressions with a grain of salt, because I can’t prove that this is from the float, but I don’t have any other explanation.

I still get this strange feeling in my right temple region. It is a positive feeling, almost like a vague pleasure twinge. Unfortunately I can’t really describe it other than like a gentle ongoing endorphin flow.

The current edition available from Amazon

I have just been reading in ‘The Book of Floating’ by Michael Hutchison, that as a result of various studies by researchers including Roger Sperry, Michael Gazzaniga and Joseph Bogen, it was demonstrated that “Not only does each hemisphere of the cortex have its own consciousness, thought and its own memories, but that the two sides think or operate in fundamentally different modes”.

This is exactly what I experienced after my first float, in the differing perspective and ‘stereophonic or divided brain thoughts‘ relating to the distance from my eyes to the ground. At the time I put it down to a natural high induced by the increased flow of our naturally produced opiate.”

However, if you watch this video, perhaps as with early research using float tanks, illustrated in the movie ‘Altered States’ you will see there is some interesting theory which suggests we have a lot more concurrent thinking capacity than we consciously use. This is something that David Kadavy seems to be promoting.

Reading this back, I sound a bit like Sheldon from Big Bang Theory and I admit I will always be a bit of a geek. I was listening to the October 31 Born to Write podcast this morning from Azul Terronez interviewing David Kadavy:

David Kadavy is a creative entrepreneur and author of Design for Hackers: Reverse-Engineering Beauty (which debuted in the top 20 on all of Amazon), The Heart to Start and multiple “short reads.”

It reminded me of some of my early school days, like when my teacher got fed up with me correcting his misinformation once too often and picked me out of my seat and threw me across the room in front of the entire class. I understand his anger. I was always catching him out. Just as well we didn’t have Google back then. I’m a bit OCD when it comes to learning and using what I learn. From my earliest memories, I was asking ‘why?’ in Dutch, English, French, German and Hungarian at about the age of 4. Our brains are almost limitless vessels saying fill me with information. The more information we have, the more we can see patterns in disparate areas and realise that ultimately as Hawking would have put it, everything is connected.

Anyway, that was the four days after my second float. It continued to deliver benefits days after.

If this is boring, skip my next one in this series about my third ever float. (Don’t worry this won’t continue to my 200th! lol) As I mentioned previously, if it does peak your interest. Check out Float Culture in Auckland or find a float tank centre somewhere near you.

My First Ever Sensory Deprivation Float – I’m Sold

Warning – Longish Blog, but if you want to know what the first time floating experience is like, you will find it interesting IMHO.

As promised in my previous blog, I am going to post a series of blogs about some of my experiences in float tanks.

September 1987

I was badly in need of relaxation and decided that the time was right. I had heard about floating previously and found a brochure at the Tourist Information Centre in Auckland’s Aotea Square.

I was very tense, there were some suspect things going on at my work (it looked like the company was being embezzled) and I was suffering from heartburn and chronic indigestion and had been constipated for three days. I feared I was becoming a candidate for an ulcer.

For some reason I felt very positive about the concept and that it could be good for me. My confidence was boosted by the fact that major sporting organizations including the Dallas Cowboys and AFL Teams owned their own tanks, for rehab of their elite athletes,  recognizing the benefits of sensory deprivation. The Cowboys apparently had TV screens in some of their tanks where players could relax on watch strategic videos.

On entering the Belleview Clinic in Eden Terrace, I was welcomed by a quietly spoken man who took one look at me and said “You haven’t floated before have you?” My disposition was obvious.

He gave me a leaflet containing initial instructions. These were essentially:

• Empty your bladder and bowels
• Take a hot shower paying particular attention to your face so that you have no itches while you are in the tank. You don’t want to get salt water in your eyes, while scratching your face.
• Put Vaseline (provided) on your private or sensitive parts to protect against the salt
• Fit the supplied earplugs
• Open the hatch in the tank, get in and close the rolling door.

Five minutes before the float ends, the underwater stereo system will pipe in quiet relaxing music. When the music ends, sit up whilst leaning your head back to avoid getting salt in your eyes, then exit and shower again to rinse of the residue Epsom Salts.

Next I got a guided tour. The tank itself (a bit less modern than this one at Float Culture today) is an 8 foot by 6 foot by 4 foot fibreglass enclosure resembling a ship’s liferaft container before it is dropped in the water and opened up. It featured a rolling door through which you enter the inner spaceship which had 10-12 inches of water almost saturated with a solution of Epsom Salts.

So I had my shower, inserted the earplugs, applied the vaseline and climbed in.

The water felt warm, thick and sort of silky, almost sensuous. I closed the hatch and was suddenly in almost total darkness. I slid the hatch open again so that I wouldn’t forget where the knob was if I needed it…..

I tried to partially close the hatch but that didn’t work, so I closed it again and lay down. Then I sat up again, opened the hatch a little and closed it again just to reassure and orient myself.

Finally I lay down and tried to relax. I had been warned that my shoulder and neck muscles might start to hurt a little as they start to unknot and release their tension. The man told me to either breathe with the pain or rest my hands behind my head, flexing the muscles a little.

I tried both, but decided that a hands down version of the yoga nidra corpse position offered the most relaxing attitude for my body.

So I relaxed. As my eyes adjusted there was a little light in the tank through the little indent patterns in the fibreglass.

My mind found it hard to cope with the fact that I was totally safe from external influences which might disturb the water or distract me. I kept slipping to one side as though I was balancing on a beam and for 3-4 minutes I found it hard to maintain my balance.

Eventually I achieved a level of equilibrium. I tried to keep my eyes open but found that I was easily distracted by light, sound and even nonexistent stimuli. I closed my eyes again achieving better results, however for the next 5-10 minutes I opened and closed my eyes a number of times, just to reassure myself.

Then I started to relax physically, but my mind was racing, very much the same as when I would go to sleep at night. When you are not experienced in relaxing, you can try too hard.

I felt a spinning sensation. I was hardly moving more than a cm per second and only for a tiny distance and then I’d stop by gently touching the wall with a foot or hand, but it felt like I had turned 90 degrees. This continued on and off for about 20 minutes. My sense of time was distorted.

Yes indeed, my shoulders were getting heavy and tired. Good, it seemed I was doing something right.

Now I moved into a conscious REM State. It was exactly like the first stages of sleep in which dreams that actually take  microseconds appear to take much longer. Yet I was conscious and could feel my eyeballs darting all over the place under my eyelids. It was an interesting feeling but the more I tried to analyse it, the more my consciousness started to return.

I knew that I was reaping rewards physically but mentally, because I was constantly analysing the experience, I wondered if I was wasting the opportunity.

Next thing I knew, time had passed and I was being gently roused by music from the underwater speakers which reminded me of the whale sounds on Pink Floyd’s Meddle album. It was soft and repetitious but relaxing. It only seemed to last about 20 seconds but it was actually 5 minutes.

I leaned my head back, protecting my eyes from the salt and opened the sliding door, then eased my way out and onto a wooden platform.

My shoulders and neck felt heavy and I was a little light headed but otherwise I felt normal enough.

I busied myself in the shower, washed and shampooed my hair (yes I still had hair then), making sure that all the Epsom Salts were rinsed off. Having dried myself off, I dressed and went into the pastel colored lounge, which had comfy chairs, a booktable and a selection of drinks including many herbal teas.

The current edition available from Amazon

Although I only felt slightly light headed, things seemed to take an awfully long time. My time sense was distorted. I sat down, which felt better and picked up a book entitled “The Book of Floating” by Michael Hutchison.

I then decided that I should have a drink to replace lost fluid and selected a Peruvian Lemon Tea which sounded refreshing.

I tried to fill the jug, which was not only full, it had a ‘cup number indicator’ on the side which said it was full. I emptied a bit out again and looked down at the floor. The opiate-like action of my natural endorphins induced an unusual effect. I was getting two independant impressions.

The left hemisphere was telling me that it was about five feet from my eyes to the ground. The right hemisphere said “I know it is only about 5 feet to the ground, but my perception tells me it is nearer to 10 feet.” Talk about a well balanced split personality!

I enjoyed a mild dose of euphoria, enhanced by the monochrome pastel room. I finished my tea and had a chat with the owner who said he could see by my eyes that the float had been beneficial.

I went to pay and found that they did not accept credit cards. I got the impression that this was a bit of a tacit protest against new technology. I found it hard to accept that they took me on trust for the cost of the float and the book which I had decided to buy.

Driving away I felt very relaxed and couldn’t stop my face from smiling. I felt a time distortion at traffic lights, it seemed they had stayed on red for too long.

That night I felt I had to waste some of the beneficial effects as I had to attend a business dinner. This was Wednesday night.

Yet, when I wrote these notes on a plane from Wellington to Auckland 2 nights later, I still felt better than I should after a very tiring day. I looked forward to greater effects from passive floating more often in the short term, and experimenting with Super Learning (now used by Navy SEALS) which I read about in the book, and other possibilities in the future.

In short, I was sold!

The floating experience is different for each person, but this should give you a bit of an idea of what to expect first time. Please remember I wrote this 31 years ago and the technology has improved dramatically although the principal’s are the same.

Of Asimov, Robots, Artificial Intelligence and What is a Human Anyway

You might say I have too much time on my hands. I would answer that I never have enough time, but my back injury continues and I have had time to think in a few directions.

Whether it is HAL 9000, remember “I’m sorry but I can’t do that Dave” as an answer to “Open the Pod bay doors HAL” from 2001 A Space Odyssey?

If you haven’t tried it, ask Alexa, Siri, Cortana or whatever your speech interface is to the internet, those famous words. “Open the Pod bay doors HAL” If only Arthur C Clarke was around to experience that.

Damn, I just remembered that they had a 4K restoration of the movie at Imax last month for the 50th anniversary of the movie. I was hoping to find someone to go with and then totally forgot about it. That would have been amazing.

I collect books and in recent years have given away many books that I was never going to read again, but decided to extend my collections of specific writers and starting at the beginning of the alphabet, I looked at what was missing from my Isaac Asimov collection and amongst others bought a copy of The Bicentennial Man.

Asimov is of course famous for the 3 Laws of Robotics. Ironically a lot of people debunked his laws and said they were flawed and used that to criticise him as being unrealistic or perhaps idealistic, which is a trait of many SciFi authors of the 70’s. However, he knew that himself. In many of his stories, robots disobeyed the laws.

There is a great story in this book called That Thou Art Mindful of Him, in which is a play on Psalm 8:4-6, he also infers in some of the stories that he was Jewish through some of the characters and had a keen sense of humor.

In this story (and I’m sorry for the spoiler) a series of robots are produced and given the capability to become self aware, in effect sentient. They redefine what it is to be human and declare themselves as such.

I played with the thought of Singularity and imagined if autonomous cars could pass the Turing Test 

I also looked at what might happen if they didn’t and what hackers might be able to do.

What I keep coming back to and writers like Philip K Dick, Asimov, Clarke, Heinlein and many others foresaw 50 and more years ago and similar to where the TV series Humans is heading, is that humans are dangerous to the planet.

Now I like being human and I hope that my descendants will have safe and healthy planet for thousands of years from now and many of my little stories are in jest.

BUT, if climate change, plastic pollution, air pollution, brinkmanship politics, drought, famine, and war are the result of how great and committed we humans fancy ourselves to be, would it not be realistic if an Artificial Intelligence was developed to the point of Singularity and able to continue to learn with or without programmed biases, would their logic determine that the human race should either be limited or allowed to exterminate ourselves?

Kurzweil looked at it a different way and said that Singularity would occur around 2045 and potentially be a synthesis between human and machine, in effect human 2.0. He would be about 98 at that point in time, so it will be interesting to see if he is still around and if he is right.

Maybe Elon Musk, founder of Tesla and many futuristic projects should have the last word. He’s pretty successful and walks the talk. DARPA, Rex Bionics and hundreds of companies, universities and other innovators are developing systems that will be able to think for themselves. Yes, for specific purposes, but they are being created.

It’s interesting that in this clip, they say that Science Fiction is usually about 50 years ahead of its time. So back to Asimov, reading him today, especially a book like The Bicentennial Man, where like Stephen King and others, he talks about his stories, was he in fact prophetic?

Yes, maybe I’ve had too much time to think, but do you think we should be thinking about this. Just imagined if a machine, say a Robocop decided that using facial recognition or perhaps racial recognition, that you were, could be, or could become a criminal and then think about biases that go into programming, often of necessity.

What conclusions could an AI start taking when given some information and some bias and then left to learn on the basis of that starting point? Oh and I didn’t even mention George Orwell. He wrote Animal Farm in 1945. Remember “All humans are equal, but some are more equal than others”? Shutting up now……..

 

Blogfade and a Back Injury

Have you missed me? I’ve been off the grid, after trying to be superman and  lift a heavy bag of tent poles out of a trailer for a 4 room tent at Relay For Life and following that up a couple of weeks later mowing wet lawns (Auckland right?), piling up the clippings into a barrow and then lifting them to head height to empty into a garden bag, the straw that broke the Cappel’s back.

MRI Result? 3 bulging discs on both sides of my lower spine, all touching nerves and causing me lots of pain in my back and legs. I had 3 (starting very early in the morning) day trips to hospital when the pain was at 9/10, each time they kindly shoved a finger where the sun don’t shine to check that it still had muscle control, because my left leg is very weak and I had no sensation surrounding my left knee and referred pain down both legs. Or maybe they did it to scare me into not coming back:)

I thought I was over that one with my prostate cancer which has been in remission for just over a year now!

It was a real eye opener sitting in the triage rooms and seeing how awesome the staff are, dealing with a constant stream of frightened, sick and sore patients. My hats off to the staff (and the volunteers who fed me) at North Shore Hospital.

So I’ve been popping morphine and other drugs, (off work for almost 2 months on ACC) to the point where my brain has been mush. It only hurts when I stand, walk, lie down with a pillow between my legs (for more than 4 hours) or sit (only on a wheat bag on a straight kitchen chair with another bag on my back as I look longingly at the couch). I can’t drive and my decision making is such that I would not represent myself or my team well at work. I’m good at putting things in the wrong cupboards or forgetting what I went into a room for.

I’m not complaining, the drugs are keeping the pain between 4-7/10 and whilst I hate not having a clear head, having no responsibility means I can focus on getting well and not worrying about dropping clangers at work where I really do need to be on my game. My wife kindly took 2 weeks of work at the beginning to look after me. I can now look after myself and walk to the letterbox and back. Not twice in a row though I discovered.

The good news is I am mending. Tomorrow I will be getting 3 Transforaminal Steroid Injections guided by x-ray to within half a millimeter of the 3 nerves (sounds impressive doesn’t it). I had one a few weeks ago and it got the pain levels from peaking at 9/10 to peaking at 7/10, so we’re hoping that this lot will bring it down to a level where I can reduce the meds so I can stay in bed all night and get my brain back to near normal and start planning my return to work.

Work by the way has been fantastic. I have really felt bad about not being there with my team at the end of the financial year, but conscious that if I don’t recover carefully it could be much worse. As it is I’ve been told to be extremely careful after the injections because my back pain may be reduced, but I will have to be really careful when the pain is down to not lift or do sudden movements which could set me back, so I’m expecting some physio to follow.

So I’ve been off most social media, blogs and anything else requiring concentration, but I have been thinking. About real estate and location based services and all the mistakes we make when we buy houses. As you know, I wrote a book a few years ago about using apps, maps and location based services. I’m now looking at a follow up course rather than updating the book. I’ve been thinking about this while I’ve been off and am keen to hear from anyone who would like to share mistakes or things they would do differently when they buy their next house.

I’m not looking for sympathy, but I’d love to hear some stories about homes you have bought and things you should have checked out first, maybe the neighbourhood, crime, amenities, the commute, property values, flooding or other things that you could have researched first. Drop me a comment. Apologies for any typos, I did proofread this about 10 times.

 

How I Chose My Prostate Cancer Treatment AND Got to Remission

I have had feedback from many people that they are reading my blogs about my cancer journey and appreciation for my speaking out, when for many men this is a taboo subject. I really appreciate the feedback. It’s not exactly a comfortable thing to share. There are a couple of things I would appreciate even more. If you think these blogs are useful, please leave a comment or share it with others and if you can find it in your heart to do so, please visit my Relay For Life page. It’s a month away and I am desperately hoping the weather isn’t like it is today!

The biggest win for me has been that I am now up to 20 people who have been motivated by me to get tested for cancer, which is awesome. Prostate cancer does kill people. On Wednesday night I was standing by the window in a stinking hot room at the West Plaza Hotel in Wellington with no air conditioning, looking out at the night sky and hoping it would cool down and watching the Halberg Awards live on TV. 

In the memorial section, there was the face of Steve Sumner how died only a year ago from Prostate Cancer, I thought of a radio personality (I haven’t asked her permission so won’t use her name) who told me her father died from Prostate Cancer because he didn’t get checked until it was too late; and I thought of Paul Holmes who on one TV interview said that he wished he had never known he had cancer, but reading this story, I suspect he changed his mind as he realised how important life and his family were to him.

Anyway, I met with my urologist and my oncologist to discuss my cancer treatment options. They gave me an information pack from the Auckland Cancer Society and whilst being very diligent in trying not to let their biases show, explained a little about the options available to me. I have had a little experience with specialists who are very focused on the particular treatments or therapies they offer, and they should, because they shouldn’t be performing them if they don’t believe in them. But one size doesn’t fit all.

I was given four medical options. I did also try alternatives like Pomi-T for a long time and sea cucumber which tasted horrendous and cost a fortune. They didn’t hurt me, but the tumors kept growing.

1. External Beam Radiation. 8 weeks of radiation, which according to my oncologist has a 95% success rate for people at my level of cancer.
2. Brachytherapy. This is where they insert radioactive isotopes into the prostate and treat it from the inside out.
3. Hormone therapy. This is similar to the treatment they use on sex offenders to reduce their sexual urges, reducing testosterone and increasing female hormones. Testosterone feeds tumors, so less testosterone means less for the cancer to thrive on.
4. Radical Prostatectomy or surgical removal of the prostate gland. As it sounds.

I listened to their arguments for and against. I read the pamphlets. I joined a prostate cancer forum and asked other people who had prostate cancer about their treatments and found that they had all done a lot of research; and uniformly recommended the book Winning the Battle Against Prostate Cancer by Dr Gerald Chodak, which I mentioned and linked to in this blog.

I also went to a prostate cancer support group which was the most depressing thing I’ve ever been to. I appreciate the intent, but what an experience. One man had been told that day that he had less than 6 months to live and he was telling me how he was bewildered and horrified, struggling to comprehend a life of daily exercise, good diet and basically doing everything right and instead of looking forward to retirement in 5 or so years, he wasn’t going to be around for it; and a guy so depleted of testosterone that he had suffered massive weight gain, hot flushes, emotional swings, inability to reach an erection (and the lack of desire to do so with the depression of not having it) and more. I understand the purpose of the group and applaud the Society for providing this service, but it wasn’t for me. It could have just been that I picked the wrong day to attend.

With regard to treatment and side effects I want to reiterate that everyone is different. If you look at the side effects for any drug you take on the packaging or leaflet, most people don’t experience many of the potential effects, but the odd person could have severe reactions. I’m not trying to influence your decision. You need to make it for yourself and decide even how informed you want to be.

External Beam Radiation

As a poker player, 95% odds of success appealed to me. Imagine going into an 8-week poker tournament knowing you had a 95% likelihood of being in the money at the end if you followed instructions!

The center offering the treatment said they were prepared to provide my treatment at 7AM each morning, so I could go to work afterwards and have minimal disruption to my life.

The side effects to consider were:

• Hair loss in the area (not a worry)
• Mild fatigue (about that…)
• Frequent urination, weak stream and burning pain while urinating.
• Possible diarrhea, incontinence, impotence and proctitis.
• Reduced or no seminal fluid with ejaculation

Many of these side effects disappear a year or so after the treatment. Everyone is different.

Brachytherapy

Many of the symptoms are similar to external beam radiation, but instead of 2 months of radiation, it’s a brief surgery where radioactive seeds are implanted and that’s it. A key difference is that the side effects occur fairly soon after the implants have been placed and improve, where the symptoms of external beam occur later. Side effects include:

• Burning pain during urination
• Difficulty passing urine
• Rectal bleeding
• Sexual Dysfucntion
• Urinary Incontinence
• Bowel Incontinence
• Diarrhea
• Having to stay away from pregnant women (what if they don’t know they are pregnant?) and adolescent children.

Hormone Therapy

In the book I mentioned above, Dr Chodak explained that the treatment is more or less the same as what is known as chemical castration, the treatment that is used to stop sex offenders, because one of the primary side effects is that it reduces your libido or sex drive. Great if that means reducing the risk of a criminal reoffending, but not for a normal male, or in fact a normal couple.

• Loss of interest in sex (libido)
• Erectile dysfunction
• Hot flashes
• Loss of bone density and risk of fractures
• Loss of muscle mass
• Weight gain

Radical Prostatectomy

This is surgical removal of the prostate gland. The things that worried me the most were the risk of nerve damage and the potential to never be able to have an erection again as well as a reduction in penis size. Sorry of this is something that you find creepy to read, but it’s amongst the things I had to consider. If I was 70, these things might not be such a big deal, but I’m not and they are. In the USA this surgery is frequently done by a robot, but here it is humans and I don’t care how good the surgeon is, stuff happens, there is a high risk of at least partial nerve damage.

Ignoring infections and other things that can go wrong and potential risk of tumors crossing the enclosure holding the prostate gland in place (also a risk with biopsies and the Brachytherapy), side effects include:

• Urinary incontinence and/or urine leakage which can mean having to wear pads for 1-3 years or longer
• Trouble getting or maintaining an erection, potentially permanent
• Dry orgasms and loss of sensation and pleasure (and the impact of that on your partner)
• Infertility
• Penile shortening
• Bowel Injury

But Wait There’s More

So this is just scratching the surface. I read the book and it literally gave me nightmares. It wasn’t a short book and went into way more detail than what I have shared above. It was very thorough in explaining all of the details of the different surgeries and what factors you should consider based on the severity of the cancer, your age, your lifestyle. It helped me make my decision from a personal and clinical perspective, but I’m not sure I would recommend it. I was pretty upset and stressed out for a long time after reading the book. I can’t even bring myself to go back to it to quote parts of it to you.

My decision

I want to reiterate again that my decision was based on my feelings about the treatments, the people offering the treatments and my personal circumstances, my relationship (of course my wife was also part of the decision making process because it affected both of us), my age (I plan to be working for at least another 10 years), my family and obviously wanting to survive and live a productive and happy life.

I chose external beam radiation for various reasons.

• A 95% success rate is not to be sneezed at (unless you become semi-incontinent!). It’s no laughing matter either as people who have semi-incontinence can attest to.
• My granddaughter was 7 and I didn’t want to lost that special relationship of being able to sit next to her, have her on my knee or miss out on hugs. I was worried that if for her safety, I had to keep my distance that this  might have a long term impact on our relationship. You can’t get that back and she was too young to have been able to understand if I noticeably kept my distance.
• While it would impact on my ability to travel by plane for work, which I was doing 2-3 times a month, I could do some of the treatment over Christmas.
• Doing the treatment at 7 each morning meant that I wouldn’t have to take time off work.
• I wouldn’t have to risk sitting next to someone on a plane with radioactive seeds between my legs. Imagine saying to the airline, I’m flying on Friday. Please don’t seat me next to a child or a pregnant woman. What if the woman doesn’t know she’s pregnant? Okay please don’t seat me next to ANY woman. I wonder how many people do and if any women struggle with fertility as a consequence of having randomly sat next to someone on a plane or at a concert. I wasn’t going to have that risk on my conscience.
• The side effects seemed to be the least severe of the 4 options.

“I’m sorry, but you’re not in the 95%”

Unfortunately after 2 months of radiation treatment, when I had a series of scans to see how it went, the treatment was unsuccessful. I was in the 5% of people for whom it didn’t work.

I got many of the side effects, some very severe, but the cancer was still there. I may write about the year during and after the treatment for anyone that wants more insight into what it was like. From drinking a bottle of water every morning on the way to Mercy Hospital so that my full bladder would push my internal organs out of the way during the radiation treatment, being afraid that I couldn’t hold it, the painful urination, the loss of libido and erectile dysfunction, a feeling of loss of dignity, chronic fatigue, depression, needing to stay close to a toilet and on the other side, meeting some wonderful people, both fellow patients and those who helped me with treatment of my body and mind.

Another Choice

So then I had 3 more options. Brachytherapy wasn’t much of a choice given the radiation had already failed, so I had to go to hormone treatment, given I do not want the surgery.

This treatment was just pills, nothing more. I had side effects and continue to have some lingering effects. I had to make use of the counselling from a psychologist at the Cancer Society.

The end result was about 7 months ago my Oncologist said “You are in remission”. I had to ask what that means, because sometimes people talk about being cancer free. There is no such thing, but you can be in remission for years or decades.

This is important because I frequently read or hear stories about people being cured of cancer. As I understand it, there is no such thing. We all have cancer cells, they may be dormant or managed, either with treatment, diet or our immune system, but you do not get cured.

I am now on 3 monthly visits and in January had my 3rd one where my oncologist said my testosterone levels are good, my cortisol levels are lower than we would like, but I am producing some, I am still barely producing adrenaline, but my PSA levels are low and stable. I don’t have to go back for another 2 months.

Our 2018 singlets have just arrived. The 18 for 2018 is made up of the names of people living and sadly past who we are walking or running for on 10-11 March. The day after my birthday.

I’m in remission. I am focused on Relay For Life. Check out our Team Early Birds singlet. The 18 for 2018 is made up of the names of the people we are walking for over 18 hours. We are raising funds for the Cancer Society who do amazing work. They don’t take any money out of it for admin or running the society. It goes to research and supporting services like the psychologist who helped me and accomodation for people who have to travel a long way from home for their treatment. I’m on a mission to get people like you to donate $5 to this wonderful cause. Think of it as a koha for the time I spent writing this blog.

For those who are facing decisions like mine. I’m happy to answer questions and I will probably share more details of what it was like physically and emotionally to go on this journey.

In the meantime, I’m working on recording my EP of 4 songs called The Cancer Diaries. I am struggling with the rhythm guitar for the second demo, called Who Stole My Words and may need to call on one of the guitarists who offered to help me with this album to lay down a track for me. I hate asking for help but I need some with this.

I hope this has been informative and not an uncomfortable read. It is an uncomfortable condition as is any cancer and I hope that this blog is helpful. I hope that I can increase the number of people who get tested early beyond 20. I hope you will leave a comment, question, share, or make a little donation to Relay For Life.

 

 

 

Prostate Cancer. No Pressure. Need Help for Relay For Life 2018.

So when my GP told me that my PSA levels had increased every test over the last couple of years when they should fluctuate, he said there was a risk that I might have cancer. He told me to lie up on the bed in his surgery, pull my pants down and my legs up and before I had a chance to ask, “is this necessary?”, his gloved finger went where the sun don’t shine. To say that it was unpleasant was an understatement, but I barely had time to feel embarrassed.

We wasted no time in making an appointment with a urologist and off I reluctantly went. I’m not sure what I was dreading most, being told I had cancer (If I did) or having yet more insult and injury to my dignity.

A sign on the track at Relay For Life

He was a very nice, gentleman who explained to me what was going to next and asked if I had any questions. I was feeling pretty much in shock and bewildered and was barely taking in what he said.

He asked me what my flow pressure was like when I peed. I thought it was OK most of the time. They told me on the phone that I had to arrive with a full bladder for a urine pressure test, so I was ready to relieve the pressure.

I had to pee in a basin that had a sensor in it and I thought I did pretty well, as he stood in the next room, watching the gauge. He then burst my bubble and said that my flow was well below average and asked, would I like a script for something that would make it flow faster.

I declined. Up on the bed and he started prodding my stomach and then asked me to pull my pants off, lie on my side with my knees hard up against my chest.

Now dear reader, you may be feeling squeamish, you might be feeling embarrassed, you might be thinking, I’m pulling out of this story.

You might be thinking, why is he telling me this? Is it necessary?

No it isn’t, but I want your help and if I get some donations for our next Relay for Life, I won’t share the next step with you and I won’t tell you graphically how I felt.

People ask why I share my story. I’ll tell you why. All around me people are either battling or losing the fight to cancer. One in 3 people in New Zealand will get cancer and we have to do something about it. We can do something about it. The numbers are pretty similar in the western world.

Relay For Life isn’t just for raising money for cancer research, it is about remembering the people we love, work with, our friends and family who are affected by cancer. It is as much a celebration of life as a sharing of loss.

We walk for 18 hours in relay, and the number 18 on our singlets if you zoom in, you will see it is made up of the names the 13 of us are walking for. Some have passed away in the last few months, some are battling, some have been gone for some time and some are in remission like me.

When you walk around the track and you see an 11 year old in front of you and on the back of his shirt it says ‘I miss you Mummy’, you know why you are there.

So to stop me sharing the rest of this visit to the urologist, how about going to the Relay For Life website here and making a small donation. $5 is tax deductible if you are in New Zealand and it would mean a lot to me to have your support. If you’re overseas, maybe you won’t get a tax rebate for it, but I’d still be very grateful if you could share the cost of a coffee.

These are the bags we put our clothes in, when we go in for radiation treatment. Each one of these bags represents a person being treated for cancer at any given time, just in this clinic

I hate asking for money, but it isn’t for me. It may will help you or someone you care about. Remember that number. 1 person in 3 in New Zealand will get cancer at some stage in their lives. Draw up a little list of people in your family and then separate one third of the names on that list. Imagine if those people got cancer. This is personal folks.

This year Relay is on the 10th and 11th of March. We got through the night to symbolise the cancer journey. You don’t have to walk the whole time, it’s a relay, but many of us like to do as much as we feel able. Our team is quite small this year. So far only 13 people. If you feel you would like to join us please head to the Team Early Birds page and let me or one of the team know.

Will you join us in person or in your thoughts?

I’m in Remission, New Song for Cancer Album and Relay For Life

What a week I had last week, back to work blues, PSA blood tests for my prostate cancer and the usual agonising wait for yesterday’s meeting with my oncologist after my blood tests on Wednesday and more.

So the visit was short and sweet, my PSA levels have gone down a little, without the help of any more drugs and after prodding my stomach (not quite sure why and I didn’t ask) I don’t have to go back for another 3 months.

That’s a weight off my mind and I can refocus on getting on with life and I have so much I want to do.

First, there’s Relay For Life on 10-11 March. Team Early Birds is back for another year and I need your help. Our team is a little smaller than in previous years and if you would like to join us, we would love your company. You can get all the detail here.

If you can’t join us, it would be great if you could leave a little donation. Even $5 is tax deductible and it is an awesome cause. With one in three Kiwis getting cancer, anything we can do to aid research and the awesome work of the Auckland Cancer Society who have been a huge help to me, is welcome. Last year I raised $1,500. So far this year I haven’t got to $50. So either way, can you lend a hand?

My Big Project A Cancer Video EP, the Last Song

As you may recall, dear reader, I am working on a HAG project which is huge, creating an EP and video series for people with cancer and those who are supporting friends and family with cancer in some way to help them on their journey. If you missed that story, details are here and again I need help.

The last song is called Dare to Dream and after the good news again on Saturday, it seems the right time to share the story and lyrics with you. This song is intimidating to me because it has tracks that I can’t play including a sax and a gospel choir. I have no idea where to find either of these, but I am confident that with some help from my friends, I will.

The song is about being told I’m in remission and trying to process what that means. I used to think that being in remission means that you are cancer free, but when I asked Benji, my oncologist about that he said “You will never be cancer free. Once you have cancer, you have cancer. Remission means it is in control and you don’t need any treatment, for now.”

So for the foreseeable future I will be stressed out on the last week of each 3 month period and hopefully like yesterday, will be told the good news that I continue to be doing fine. Benji thought I was looking very well and looking back at photos of my pasty pale face of a couple of years ago when I was undergoing radiation treatment and dealing with chronic fatigue, I look great!

So if you’re still with me, here are the song lyrics. Super Better is an awesome book by Jane McGonigal which now has a game and a Facebook page. There is also a great TED Talk by her for those who don’t want to wade through the book.

Verse 1
I’m in remission, it’s a reprieve from my condition

In 3 months I’ll know more, for sure

Pinch me am I dreaming? Please explain the meaning

Before I close the door, does this mean I’m cancer free?
Chorus 1

The winter sun is crisp and clear,

I’ll write a list for 10 more years

Of things I want to do and see,

Things that mean the world and

Dare to dream, dare to dream

So much more for you and me

So much more that we can be

Verse 2
I’m in remission and I give myself permission

To embrace each new day as if the cancer has gone away

I’m going to grab a power up a SuperBetter lift up

Cause there are many on our team

Who need to dear to dream.
Chorus 2 (gospel choir for alternate lines)

Dear to dream

Watch me lift my hands up high

Dear to dream

Reaching out to touch the sky

Dare to dream

Take off like a bird and fly

Can’t believe this feeling

Repeats after break with lead guitar and horn section

So there you have it. I’m currently working on the demo for my second song called Who Stole My Words, which is about an incident where the chronic fatigue brain fog meant I couldn’t come up with simple words like current and channel to explain how I found myself upside down in an ocean kayak, without any fight or flight instinct because I wasn’t producing cortisol or adrenaline. I was upside down, underwater harnessed in thinking ‘this is interesting’. Anyway, I’m having a bit of a struggle going from fingerpicking to strumming and staying in perfect time with the clicktrack so I can add a walking bassline. But that’s another story.

So, can you help with Relay For Life, either with a small donation, or joining the team for 10-11 March in Mairangi Bay at the Millenium Institute? I’ll be there all night relaying with family and friends to raise money for the Cancer Society and in honor of the friends, family and colleagues who are fighting or who have lost their battle with cancer.

Do you know an Auckland based Gospel choir or a small horn section, or at least a sax player who could help with this song? The album will be Not For Profit by the way. I know I will have to pay for some of the work, which I will crowd source, but the end product will be free.

Want more info on my cancer journey? You’ll find it here. If you know anyone else who might find this interesting, please share it with them with my thanks.

Humor is the Best Medicine

Check out the great guitar playing on this video. As to the song, it reminds me of the week when I read the definitive book on prostate cancer. I had to but wish I hadn’t. Great lyrics though.

Remember Reader’s Digest’s Humor is the Best Medicine? Yesterday at work a guy came up to me and said, I can’t help you with your cancer, but I can make you laugh, would you like that. I said I would and he proceeded to tell me some corny jokes and I felt better for it.

I’ve written a couple of songs about my cancer journey so far. I haven’t got the energy to record them yet, but watch this space. Music is very much a way of dealing with issues, whether you are a listener, a songwriter or composer. It is cathartic.

As to my journey, in short, I had to stop taking my drugs because I stopped producing enough cortisol which along with the cancer drugs caused fatigue which has had me sleeping very long hours and having to take time off work. I am now also anaemic and they can’t tell me why. It’s not iron, it’s to do with my red blood cells. I also became intolerant of fructose and lactose, which doesn’t give you a great number of tasty diet options.

Anyway, my oncologist told me around Christmas to stop taking the cancer drugs until we figure out what else is going on and referred me to an endocrinologist. When they didn’t ring me, I rang them and they said “The soonest we can see you is 10th of March!”. So I’m thinking, no cancer drugs, all I am really good at right now is sleeping and I feel even more tired when I wake up than when I lay down and I have to wait nearly 3 months to see someone while those tumors could start growing again. So I rang the clinic every day or two and yesterday managed to get a cancellation.

So on Monday I will go and fill another bunch of bottles with blood and wait for Greenlane Hospital to ring me to arrange a test that sounds a bit like hooking me up to a line and shooting adrenaline down it to see what happens, because my fight or flight has become sleep or creep.

I’m very grateful that something is happening and hoping for some answers and feeling embarrassed and humbled when people far worse off than I am give me words of encouragement .

Meanwhile I am also looking forward to Relay For Life in March. I don’t know how much energy I will have, but I’ll be doing as much of the 18 hour walk with team Early Birds as I can at the Millennium Centre on the North Shore on 25th and 26th of March. I am so grateful to my family and friends for organising the team, tents, clothing and everything because I don’t have the energy for it. Of course they aren’t just doing it for me, we all have friends and family that are fighting or lost the battle with cancer and each person in the team is there for a bunch of people. We wear their names on our clothing.

This is raising funds for cancer research (and NZ is a world leader) where every single cent goes to the research, nothing goes to administration and everyone involved volunteers or pays for the privilege of being there. Buddy, if you can spare a dime, maybe $5, please go to this page. If you live in New Zealand, even your $5 is tax deductible, so the charity gets the lot and you get some back. That’s pretty cool right?

So here’s the thing. One in three people in New Zealand will get cancer in their lives.

Let’s try a little game:

Take everyone in your office or flat or home and line them up. Get each person to call out a number, 1, 2 and 3. Then get all the 3’s to stand on one side of the room and the others to face them.

Stand there for 3 minutes and look at each other and think about what it would be like if those 3 people had to battle cancer and how that would make you feel. Then put yourselves on their side of the room and think about how it felt when the doctor said “You have cancer”.

Then think about what if you could help reduce that number. Relay For Life is helping fund some leading edge research such as treating cancer like a virus. Imagine being able to take something like an antibiotic and the tumors just magically get flushed out of your system. Those people are being financially supported by you encouraging us to walk in circles throughout the night.