This is Intimidating! I Need Help! A Cancer Journey EP/Video to Help Others Sounded Easy.


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The entrance to the radiation therapy room at Mercy Hospital, the start of my days for 8 weeks

Do you know anyone with cancer, depression or other debilitating conditions? Do you suffer yourself? Perhaps, like me you have a health condition yourself; and like me want to create something positive out of it, including coping strategies and fighting to find yourself back.

Would you like to be part of something that resonates with your values and help support me on this HAG (Hairy Audacious Goal)?

Yesterday I posted about Item #2 of 150 on my Life List inspired by Danny Dover author of the Minimalist Mindset, other books I have read like The Happiness Trap, podcasts like The Hidden Why by Leigh Martinuzzi, people I saw on TV programs like The Voice who had been on much tougher journeys than me and dared to dream of achieving lofty goals during the time I have been on my prostate cancer journey.

With the help of some good friends and family, some also still suffering from cancer I dragged myself out of feeling sorry for myself and decided that number #2 on my 150 long Life List of values based activities would be to created an EP and Video set of songs that were part of my catharsys and development, such that it will resonate with and help other cancer sufferers and their friends, family and support network.

I’m wondering if I have created a monster. How will I achieve this and 149 other things to boot, let alone find the energy for it, without detracting from my day job, which I can’t financially do without (and am passionate about)? How will I achieve this when I still frequently have to be woken up in the evening after my day at the office?

The answer, which is the same one as my cancer journey is that I can’t do it alone. In order to help other people, I need help from a team of people with a rich source of experience and some that can help with less specialist areas of support. Everything from project planners, musicians, vocalists, videographers to sound engineers, artists, production, social media, marketing and crowdfunding. Are you one of those?

I also just need supporters who can help spread the word, connect with members of the team, make cups of tea (or Texas Honey), run around after us and keep us on track and provide emotional support. We’ll need studio’s, technology, sound gear, meeting space, This is a pay it back or pay it forward exercise and should be a lot of fun.

Just since yesterday, I have already had firm offers of help from people, which is awesome and I will take them up on it. I’m going to need a pretty big team with a wide range of skills and it’s a labour of love, a not for profit venture.

Check out this short video with Danny Dover and see if it resonates with you. Is your life meaningful? For some of us it takes a reminder of our mortality and human condition to force change. Then you have to do something about it. You might like to take a similar journey and if you do, some elements may overlap. I’d love it to be this one.

So, this morning I started documenting what I am going to have to do in order to achieve this goal and it is huge. It could almost be a full time job in itself, which  is intimidating, but if I can find plenty of experts in different fields who will support me and donate time and energy; and find funds for the parts that I have to pay for, I’m going to make this happen. I’ve done it before with The Wireless Forum, Glenfield Music Centre, parents committees, sport club committees, Auckland ICT, SMEI International and more, all while keeping down a job. Anyway:

This is what I came up with for starters and it’s by no means complete:

Plan for Cancer Music EP / Video Project

  1. Concept Document and elevator pitch
  2. What help do I need at each phase of the project
    1. How can I even do it while keeping my job and energy?
    2. Project Manager
  3. People or organisations that can help me
    1. People who have raised their hands
    2. Influencers
    3. People I would like to approach for help
    4. Mentors
  4. Finance
    1. How much do I need?
    2. Where do I get it from?
  5. The songs
    1. Finish them
    2. Practice them
    3. Write a story about each one
  6. What do I need for each song
    1. Record basic demos
    2. Identify the sounds I want for each song
    3. What instruments / vocals do I want for them
    4. Find artists
    5. Find a producer
    6. Find a studio
      1. Engineer
      2. Mastering
    7. Record in conjunction with videos
    8. Video the entire process, not just the songs
  7. The video/s
    1. What is the story for the whole production
    2. What is the story for each song
    3. Find a videographer
    4. Write each song story
    5. Find an editor
    6. Production team
  8. Presentation
  9. Publishing
  10. Marketing
    1. Facebook Page
    2. Promo/merchandise
    3. Raising awareness
  11. Launch event and concert gifting the outcome to the Cancer Society
    1. How would they use or benefit from it?
    2. How will it reach patients and their supporters?
    3. How will it endure

Want to be on the team?

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Musicians with Cancer and Other Maladies is NOT about money or donations, or benefits, it’s about Friends reaching out for each other.


Yesterday we had the opportunity to catch up with some old friends we haven’t seen for a while, you know the kind, where the years melt away and it as if the last time you saw them was yesterday. Of course one of them also had cancer, you can’t escape it, so that made two of us.
There was classic discussion about how do you talk to people with cancer and there’s no easy answer to that. Don’t ask “How are you?” We get asked that all the time and you probably don’t want to hear the answer. Also, when we are getting treatment the doctors and nurses ask how we are doing and need to train us to share all the gory details, so you could find that asking that question leads to even more awkwardness. By all means do ask if there is anything you can do to help. I’ve had lots of kind offers, most of which I haven’t taken up, mostly because of fatigue, but the offers mean the world to me, truly.
One of our friends asked about my new Facebook group Musicians with Cancer and other Maladies and asked if it was about getting donations. The simple answer is a resounding NO. I’m not looking for money, I’m not after benefit concerts; and having trolled YouTube looking for something similar to what I’m trying to establish for other musicians, I can’t find anything. They all seem to be about donating to research or people who need help. So I understand why people might think that.
That’s great because it shows there is a need for something different. This is just about helping a friend. A lot of the videos I am posting are asking for money at the end of a heartbreaking story. There are groups who need that and we support many cancer charities and our Team, the Early Birds will be doing our 4th Relay For Life in March, but that is nothing to do with  this page.
s1560019-2What people need most is the encouragement of friends. For example when people shave their heads in support of cancer, what matters to the cancer sufferer isn’t the money, it’s the gesture of solidarity. When my beautiful empathetic granddaughter had her hair cut (which was her idea), it was so that it could be made into a wig for someone with cancer who had no hair.
So please, no money, I’m just looking to create an environment where people who have friends with a condition that makes it hard for them to motivate themselves get some support.
I’ve opted for musicians for a number of reasons, probably the most important is that playing music is cathartic, it generates good feelings for both the musician and the audience. But what I’ve found is that sometimes due to chronic fatigue in my case, or perhaps depression in other cases, you just can’t bring yourself to pick up your instrument, or if you pick it up, you don’t have the energy to play it.
motivational-txtHere’s an example of what I mean. I received this from a good friend who sends me a message every day. I also get similar messages from friends who are much worse of than I am.
I can tell you that even when I really feel too tired for anything and fatigue is a bitch, nothing like just being tired or sleepy, but I get the message and off I go to the music room and play. It helps my soul and spirit even if I don’t feel like it.
But this isn’t about me, it’s about creating a movement of people helping people. It looks like it’s going to be a hard slog to make this work but joining the Facebook Group even if you don’t know anyone with cancer right now, you will. Just knowing you have friends who care makes a big difference. If they see you post a comment or share a photo, video or story, you will make a connection.
This is an example of what I’m talking about. Not the advertisement at the end, just the concept of friends being there for each other.
Anyway, as usual this is turning into a book. My request for you is as a friend or associate of mine or of anyone that has cancer or depression or PTSD or whatever, join the Facebook group and tell a friend you are there for them. A lot of you are serial networkers and you can help by spreading the word through your network. You will be doing a good thing.
So send no money, just help pay it forward if you would be so kind. If music means something to you, if it has ever helped you, if your friends matter to you, this is a really small thing that could mean the world, even if just to a couple of people.
Thankyou so much. Feel free to leave a comment.

Martin Fenwick Should be Gruntled Right Now


Last week I had the privilege of attending a training program run by Martin Fenwick, author of The Change Factor: Insights For Leaders of Change. As a subscriber of my blogs including SoLoMo Consulting and The Future Diaries, you will know that change has been a major motivating factor in my life as a futurist, right back to the promise made to me and my contemporaries, that my problem in the future would be what to do with my spare time, as automation took care  of the majority of our human workloads.

BORDER-CLOSEDChangeI am passionate about change and the need for traditional businesses to embrace and create change, less it be foisted on them by a competing business model. Some examples of my thoughts on the book industry that you may have previously read are here.

Anyway, I am also passionate about languages and particularly the English language, whether it is new TXT language which can have me ROFLMAO, grokking people or in this case we were wondering if there was a word gruntled, being the opposite of dis-gruntled. One of my colleagues checked on her iPhone and sure enough, there is such a word and it is in all the dictionaries.

I was interested to read on Merriam-Webster that it was first known to be used in 1926. I thought it would have gone back way farther. Never mind. The conversation went on to influence and we thought it would be interesting if we could get other people using it. I, typically suggested that I would see if I could spread it’s use with a #hashtag, which I have duly started doing. So if you look for #gruntled it is likely to stem back to a tweet or a Facebook post from me, which was motivated by the training session with Martin Fenwick.

Why bother? Why do people do flash-mobs or climb mountains? Because it can be fun and interesting. One of the things that really interests me and that I frequently research is fads and trends. How do they start? How are people influenced? What makes some things work and others not? How can you get people to do things that are good for the community (such as pay attention to recommendations about real time traffic and helping avoid congestion).

So here’s your task. Leave a comment or post a tweet with the hashtag #gruntled. RT or share this post and lets see if we can’t get people using the word. It could be a great conversation starter for you. I’m feeling gruntled today, how about you? If you think it’s a cool idea, tell him so on Twitter. Let him know you’re pretty gruntled about it.

Who Can You Trust? Who Do You Trust (Read Time 1:41)


Who do you trust? Who can you trust? With happenings in Auckland, New Zealand mayoral politics recently, the NSA spying, and other revelations, we find ourselves in interesting times. With the invasive growth of social media we live in a world of increasing transparency. Corporates and Governments which have thrived on sharing only what they think people need to know are losing that battle.

I’ve been reading article in The Futurist by Rolf Jensen, Chief Imagination Officer (I like that title!) of Dream Company in Denmark who compares today’s society to the first Renaissance. Gutenberg’s Press accelerated the spread of new ideas, and the golden age sprung out of the middle ages where much of the world was controlled by a religious hierarchy.

FragWe have a similar break-up to political hierarchy’s now, particularly in but not limited to the Middle East and Europe, and like the Gutenberg Press, Social Media is now making important information available to the masses, most significantly in real time. This means that it isn’t possible for governments and corporations to use smoke and mirrors quite so much. With trending information, we can see right past the kaleidoscopic obfuscation to what is really going on.

Here are some interesting statistics that Rolf shared in his article in The Futurist:

  • From Pew Research: In the 1960’s 75% of the US public trusted their Government. In 2010 the result was 25%!
  • The European barometer polled UK voters in 2005 and found a trust level of only 34%. In 2012 that was down to 21%.
  • CEO’s of large corporations are trusted by 45% of the US population (almost double the number that trust their politicians, that’s positive isn’t it?)
  • Gallop says that teachers are trusted by 84%. That’s great news isn’t it. What a shame they get one of the smallest parts of the budget!

Back to social media though, what we are doing is finding groups of people that we do trust and building a new society. We’re sharing knowledge and information in countless ways that have immediacy.

As an example, in my new eBook, Buying a House – Using Real Estate Apps, Maps and Location Based Services, I speak a lot about using social media to research where to live. I cover questions like where to find people who are like you, or people who can tell you about a suburb or area, who have nothing to gain by sharing that information. Who can you trust to give you honest information?

I feel very grateful to live in such exciting times where the power is gong back to the people. Of course ‘the people’ do have to take the power and whilst everyone subsequently had an opinion on Mayor Len Brown’s indiscretions, only 33% turned up to vote in the Auckland local Government elections. I do like the saying ‘You get the Government you deserve’.

So who do you trust? Who do you go to for advice? How are you going to use the information now available to you, to help build the world you want for yourself and your children? How will you contribute?

Comments welcomed.

Michael Q Todd is a Social Media Expert


The world is full of self proclaimed social media experts, many of them legends in their own minds. Every once in a while you come across someone who not only really does understand how it all works, but one that practices what they preach. 

Presenting at his Auckland Seminar

Presenting at his Auckland Seminar

One such person is Michael Q Todd. I had the pleasure last week of meeting him in person in Auckland and attending one of his seminars which was a pre-launch of his upcoming book The 7 Pillars of Your Online Success. Michael is an ex-pat Kiwi who lives in Japan with his lovely wife Dr Yoriko Todd.

The mix of attendees ranged from total beginners to very experienced people including Sean Mitchell of Techday, Jason Kemp of Dialog Ventures, Mark Thomas of 2Review and Roger Bennett, one of New Zealand’s serial networkers and connectors, all people who are very passionate about what they do. You have to be, to go to a 3 hour seminar on a weekday evening. There was a quality of debate, illustrating that one size doesn’t fit all and Michael managed the proceedings like the pro that he is.

I’m not going to tell you about everything he covered, it was an introduction to the new book and one that I am very much looking to receive an advanced copy on. I’ve read a couple of pre-released chapters and they are winners. You may be very good with one application or aspects of an application, but be missing out on others. Another is that this is a changing environment. Social media sites such as Facebook, LinkedIn and Twitter are constantly adding and modifying features, you need to keep abreast of these. New services like Vine, Empire Ave (one of my current favorites, you’ll find my account here)  and Posse  are popping up all the time. Some of these will be valuable to you. Never assume you are up to date, because you will be wrong. If you don’t keep up to date, you could end up like this moth (not for the squeemish) I captured on my second Vine attempt, being devoured by a praying mantis.

This is one of the reasons I really like

Following are a 3 key takeouts for me:

1. It’s about selling. Anything you do is social media has to have a purpose, an end game. It is usually to sell something. It could be the products or services you provide to customers, it could be selling your consultancy, or perhaps promoting your sporting activity, music or hobbies. Start with the end game in mind.

2. Three things that brand you. People get confused when you tell them you do lots of different things. Define the 3 most important things, based  on (1) above. Give this some serious thought. If you have too much going on, narrow your focus or you will confuse people and won’t sell much of anything. For me, I am

3. Plug the gaps. One for me is Lists. I used to have a very successful newsletter many years ago which I sold as part of my consultancy and training school, the New Zealand Smartphone and PDA Academy. It had a large following and I really enjoyed the feedback from readers. Lately I thought that social media had replaced email newsletters, but now realize that they add another dimension. What are your gaps?

Once in a rare while you meet someone who will make a profound and positive difference in your life if you let them. I have had a few of those over my years and I believe that Michael Q Todd is going to be one of those. Whatever business you are in, or want to be in, whatever role you currently play in life, you are a brand and Michael can help teach you how to focus and market that brand and to reach the results you desire. You can find out more about him on his website.

I’ll leave the last word to Michael from one of his many YouTube Videos

Census 2013 So What Did You Think?


CensusOur household did it online and I have to say it was a smooth and easy process. The questions we didn’t have to answer were grayed out and we were all done and dusted in no time. Hopefully this means that finally we can hold referendums and vote online in future.

However, to me it was a major missed opportunity to learn more about who Kiwis are, what they do and where. This seemed to be to be simply a modern version of the feudal system where nobility tried to establish how much tax they could claim from their citizens. I love the Census system, always used to use copies of the books the Statistics Department used to put out and have been a keen user of the tables and tool builders on the website over more recent years. This Big Data has a huge impact on where to do business, where to build shops and factories, schools etc and the potential to not require costly double ups of data collection as will remain necessary for many Government organisations.

Here are a few thoughts from me of things that I would have liked to know and would have been easy to include and a few comments on what was included:

Ethnicity. For a country that is so multi-ethnic there were only 8 ethnicities offered and one of them was New Zealand European. That effectively makes it a political question and one that does not allow qualitative or quantitative research. As anyone who has studied statistics knows, most European Caucasians will  select the first option, leaving us with skewed data. How about culture. I know people who will register as Chinese because they look like their ancestors, but were born and raised in New Zealand and in most things they do other than appearance are indistinguishable from any other NZ born person. On the other hand there are people who totally live the culture of their family and do not integrate much with our everyday society.

The question on what languages you can have a conversation in, was easy for people who really don’t speak English, to say they do. This to me is important because we know there are now large numbers of people who will struggle to answer a question like “where is the nearest dairy?” in English.

What is your religion? This to me is very old school. You either belong to a sect or you have no religion. What if you are agnostic, spiritual but don’t belong to a particular church? This would effectively assume that if you have no religion, you do not believe in a higher spirit, God if you will.

I would have liked to know what people’s jobs are. As a futurist, I’m aware that many of today’s roles or job titles didn’t exist 20 years ago and it would be very interesting to be able to identify shifts in trends in employment. Yes, this information is available to IRD, but I want to know these answers and you could argue the same about the table which asks about personal annual income.

The employment questions also didn’t support all options. For example, I am a founder in a couple of start-ups. I am not an employee and I do not draw any money from the companies. I work very long hours in them. But I couldn’t answer the how many hours do you work in your job, because I’m not employed by the companies. These are not family businesses or family farms, although we do have a project creating virtual pets. Because I don’t have a ‘job’ all the options below these questions were grayed out. I was left with the questions of did I apply for a job and if so, how. BTW I also do not get any sort of benefit from the Government.

The only questions on health focused on disabilities that stop you from earning money or require a benefit. Wouldn’t it have been interesting to get more information on conditions such as asthma, diabetes, ADHD, Autism, Cancer etc. where people continue to work or study. Not so much from a single point in time but from a trend perspective. Tie this into geospatial mesh blocks and area units and some very interesting information might have emerged. What about depression and mental health? If we were able to see statistics based on location, what discoveries might that lead to? Perhaps ones that Government doesn’t want to reveal?

They asked how many cars were available to the household, not how old they were, how often they were used, how big the engines were, whether they were NZ new? Yes, again I know this information is collected by other Government agencies, but it is not made available to the public and business in the same way.

Question 32 would have appealed to teachers. In the last 7 days did you work for pay, profit or income for an hour or more. Novopay anyone? How many people worked but haven’t been paid? Many have waited much more than a week, I’ve heard of people who still have pay overdue for months! (No I am not a teacher).

What else would I like to know?

  • Do you have a land-line (that has dial tone)? Because in the event of power outages like earthquakes, they often still work.
  • Do you have a broadband connection? VOIP?
  • How many computers do you have at home that can access the internet?
  • How many mobiles do you have in the household that are connected? How many of those are Smartphones?
  • How many hours a week do you spend: Playing Sport or other outdoor activities? In club or organised activities? Watching TV? Playing computer games? On social media?
  • Do you BYOD to work and use it for work purposes?
  • How often do you buy fast food or eat out?
  • What about savings? What do people do with their money? Are they part of a super scheme like Kiwi Saver? Do they buy stocks (Mighty River Power would like to know)? What was the last big purchase in the last 12 months?
  • How about leisure, do they go away for a holiday? In NZ or overseas? Can they afford one at all? How long for?

There are many more questions that could have been asked like, how easy was it to complete this online? Would you be happy to vote in the next elections online?

So in summing up, its great to finally have a Census again and I’m looking forward to finding out what has changed in New Zealand, particularly as a result of the Canterbury earthquakes, but also information like how many NZ born people have left the country permanently, what is the make up of this country today compared to the last Census.

Congratulations on what appeared to be a smooth online operation, but what a missed opportunity to get some more learning. I think there has been so much focus on finally getting the job done, that there was insufficient focus on getting some highly important and valuable new data. The world has changed so much in 5 years. It appears like Novopay, that not much else has when it comes to taking advantage of 21st Century technology.

What do you think?