What’s It Like to Have Prostate Cancer Radiation Treatment, a Bursting Bladder AND What Does that Have To Do With the Price of a Cup of Coffee?


Mercy ScannerI chose radiation treatment for my prostate cancer because it allowed me to continue to work and because it has a 95% success rate.

On the first visit to the clinic with my wife, we were waiting in the lounge to have the process explained to us and for me to have a CT scan so that they knew the shape of my body. This was so that every time over the 8 weeks of my treatment they would be able to focus the radiation on the specific area to be nuked and minimise the risk of damaging my bodily organs.

My wife and I were sitting in the waiting room when a man rushed pass at a frantic pace, loosening his belt as he ran for the bathroom in a cold sweat. He was in so much of a hurry that he was sitting on the toilet before he had even got the door shut.

One of the things you can lose in this process is your modesty. I wouldn’t ever want to be that guy, when all the heads turn in his direction, embarrassed for him, turning away again as he comes out, hoping he didn’t see them.

The process is that roughly 45 minutes before you have your radiation  treatment you need to have drunk enough water to have a full bladder when you have your therapy. The reason is that this helps push your organs away from the prostate treatment area, thereby protecting them from harmful rays.

IMG_2086I was lucky because I was often able to get the first appointment of the day, meaning that on those days I didn’t have to wait in the lounge with my full to bursting bladder for too long.

So you arrive at the hospital and check in with your calendar schedule and they ask you how you’re doing. I always had a stock answer whenever anyone asked how I was, which was “GREAT!”, with a big smile. Here they would say, “Actually how are you really doing, because when you are having radiation treatment, we actually need to to know?” That was a mindshift for me and there were times when I felt a bit sorry for myself and when other people asked how I was, I told them as well. I wish I hadn’t, but then they did ask right?

So the next thing you do is go downstairs to a changing room where you collect your yellow daffodil bag which contains your lava lava which you will wear for the next wee while, holding on to the water in your bladder. Your clothes go into the bag and you put it back on the shelf with the others, realising just how many people are currently getting radiation treatment like yourself. It’s all sorts of cancers of course, not just prostate.

I met some great people while waiting for my treatment, both patients and their partners and we shared battle stories. Often the partner was feeling more stressed than the patient. I met people who were from out of town who had to stay at Domain Lodge, a facility provided free by the Auckland Cancer Society for cancer patients because the distance was too far to travel each day. This had all sorts of consequences. Children still had to be looked after, bills still had to be paid and some of them were running their own business and typically the treatment was every day during the working week. This is one of the reasons why I am a staunch supporter of Relay For Life which is next weekend, the 10th overnight through to the 11th of March at the Millenium Sorts Institute on Auckland’s North Shore.

lava lavaSo it comes your turn and you adjust your lava lava so it won’t fall off and wander down the corridor, past the control room where they are going to watch you on camera, put your valuables on a chair. Then you lie gingerly down on the scanner bed, hoping you can hold your water. IMG_2256

The friendly staff chat away with you and each other as you get settled, with your head under the scanner and your legs on a pair of moulded supports. They put a pillow under your knees and you focus on your bladder.

Then they adjust your lava lava and with a pen of some sort draw a mark at the point where the radiation will centre, which becomes less embarrassing after the 20th time; and they leave the room. Then the noise starts up and they talk to you through headphones as the treatment begins. It only takes a few minutes and as it finishes, you thank them and rush for the bathroom to empty your bursting bladder as quickly as you can as they tell you how well you have done once again.

IMG_3512Sometimes you have to wait longer than your booking time and it can get pretty uncomfortable. One morning they had to do maintenance on one of the scanners and I had to wait so long that I had to go to the bathroom, empty my bladder and then drink another bottle of water and wait the best part of an hour for my already stretched bladder to fill up again.

The worst day was when someone before me arrived late and I had to wait over half an hour longer than usual before I got my turn. They said if I wanted to I could empty my bladder and start again, but I had to go to a meeting at work and I didn’t want to be at the hospital any longer than I had to. So I gripped on to the edges of my chair, tightened and loosened, tightened and loosened (not a typo) my core muscles focussing on not losing control of my bladder.

IMG_3437I came very close to having to rush to the bathroom several times, but I didn’t want to blow my perfect record. My pride rode to my rescue.

The pain and pressure was getting worse and I persisted. Nurses came to me a few times and asked me if I wanted to start again, pointing to a nearby water fountain (not the imagery you want at that time but well meaning). I replied that I would soldier on.

Eventually after about an hour I got my turn and barely adjusting my lava lava, just acknowledging to myself that by the time I got to the room, it might be unraveling from my body, I waddled to the machine and gingerly got onboard, hoping for everything I was worth, that I could hold it in.

We got settled and barely aware of the daily x (actually a little line) marks the spot being drawn by the nurse just above my privates. I just focused all my energy on my now very full bladder which was telling me that I wasn’t responding to the messages it was sending me. I was determined to hold it in, but it was getting more difficult by the minute and I was just wishing they could speed it up. Time seemed to go into slow motion, but the discomfort got worse.

Finally the nurses left the room and I lay there pulling up on my core muscles for all I was worth, cringing with the pain and being told through my headphones that I needed to keep still. “Easy for you to say I thought”.

No, I needed to pee and I needed to not pee and I needed to hold those muscles in. What if wet myself? What if I peed on the machine bed? I still had a little dignity and I remembered that guy, rushing for the bathroom on my first induction visit.

I almost got off the machine 3 or 4 times, but I hung in there. Then the radiation treatment started and amidst the din of he rotors, I thought to myself, “I just can’t hold on anymore, I have to get off!” Then realisation set in, as I was being reminded to keep still, that if I got off while the radiation was beaming at me, I could potentially damage other parts of my body.

I clung on for dear life, cringing, counting the seconds, trying to keep still and then after the machine stopped, I was halfway off the bed as the nurses were coming back and there I was.

Now I was the guy rushing for the bathroom for all I was worth, not bothering to waste time locking the door, letting the lava lava unravel to the floor as I dived for the toilet. Oh the relief through the pain!

IMG_2150I picked up my body with my bruised dignity, got changed, went to the bathroom again and finally walked up the stairs to the nurses station to get a smiley face on my monthly chart, to say I had my treatment for the day. IMG_2105

This had been one of the days that I was hoping would never happen to me, but they did tell me that we all go through it.

Eventually after 8 weeks I had completed my treatment and eagerly awaited my visit to the oncologist who I anticipated would have good news for me.

Unfortunately he didn’t. He said that while 95% of people respond well to the treatment and find themselves in remission, I was in the 5% who didn’t.

So after 2 months of drinking water, driving each morning to treatment and then off to work, I was no better off than I had been before I started. That was a bit of a body blow and whilst I understand statistics, I had thought about the odds and as a keen poker player had thought to myself that if I had gone into a casino for a tournament and been told that I had a 95% chance of being in the money at the final table, I would have been really excited. The 5% seemed really unlikely.

IMG_3516The Coffee

After each radiation treatment I would go into the hospital cafe and treat myself to a flat white and a huge cheese scone. I couldn’t have breakfast before the treatment, so this was my little reward to myself and I came to look forward to it. When I went back to the hospital for specialist appointments I usually went back to the cafe for nostalgia’s sake, but it never had the same satisfaction as it did on the days I had radiation treatment. IMG_3418

So here’s where the coffee comes in. A cup of good coffee costs around $5. Coincidentally, that is the level where a donation to Relay For Life becomes tax deductible. That means your $5 donation only really costs you around $3.50. That’s peanuts right? But what if all my readers gave that?

I was going to say, if you know anyone who has cancer, how about making a small donation in their honor, but you know me don’t you? You now know me better than you did before, because I have shared some very personal experiences with you.

Next weekend when I spend the night walking around the track at Relay For Life with my friends and family, I am doing so to help raise funds for the Cancer Society to help fellow cancer patients with accommodation, psychological help, research and much more. It is all rather meaningless if I don’t get donations and I haven’t even got a third of my modest target so far.

So here is my plea. Can you find it in your heart to make a $5 donation for a good cause? 1 in 3 Kiwis will get cancer. I hope that will never be you, but it will probably be someone you care about. Will you please help? I would be so grateful.

RelayForLife17f

This guy must have been really hot. The purple sash denotes being a cancer patient and survivor

It’s been a real struggle this year to get donations. So I really thank you for paying it forward and also am very grateful to my friends and family who are in Team Early Birds, relaying for 18 hours to support me and also people who they have lost or are still fighting the good fight.

 

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10 Things I haven’t been quiet about


I’ve had a few comments suggesting I haven’t been blogging much lately. When it comes to this blog and The Future Diaries I haven’t been prolific lately, but I’ve been pretty active on my SoLoMo Consulting blog.

So, if you’ve missed me, here are 10 things I’ve been writing about lately:

  1. Climate Change Refugees. This one on The Future Diaries where I was looking back from the future when all the expat Kiwis and anyone else that wanted a clean green, safe environment was hightailing it back to New Zealand. Interesting to see recent stats back up that notion with migration hitting a 9 year high with one of the biggest groups this year entering New Zealand was Kiwis who had been away for a long time. When fresh non-recycled water becomes a rare commodity, watch them all run to the bottom of the planet.

    Fresh drinking water that hasn't been recycled

    Fresh drinking water that hasn’t been recycled

  2. Usage Based Insurance. I’ve mostly called it PAYD or Pay As You Drive. This story today is about insurance companies using Fleet Management data to determine risk and charge premiums based on how safe commercial drivers, particularly freight companies drive. Makes sense doesn’t it. Fleet Management would also give insurance companies advanced and near real time geographic risk profiles.
  3. Planning your Thanksgiving travel. The weekend is upon us and it seems ironic that we get together to be thankful, but the process makes it one of the most stressful weekends on the American calendar.
  4. I’ve blogged a lot about your mobile knowing where you are and what you’re up to. Now your mobile is starting to know what building you’re in and which floor you are on and retailers want to know.
  5. 19 car manufacturers have got together to ensure that you don’t stop buying their cars because they have embraced location based services. You want the features but you don’t want to give up your privacy. This is becoming a very hot topic.
  6. Take away all the traffic lights and intersection controls and you end up with safer streets. Really? Well it seems to be working in some places.
  7. Hacking Traffic Systems. I copped some flack from a traffic engineer over this, who said it is an old story and DOT’s are way to smart to risk being hacked. Phew, I am very relieved. No illegal green-waves here!
  8. A smart car ITS corridor in Europe. It makes sense to try it somewhere. Driver-less cars should be tested in a safe environment first IMHO.
  9. How big do you think Virgin Atlantic’s new Google Glass check-in service will be at your local airport? It may be a breeze, but I think there will be a lot of breeze between people who will use it.
  10. There is always a story about someone who crashes their vehicle and says the GPS nav made me do it. Here’s one about a truck driver who drove into a public park in Milwaukee and blamed his nav.

So as you can see, my fingers haven’t been idle. Hopefully there’s at least one story here to attract your interest and maybe a comment.

Is Water Care Services an Oxymoron?


Our water bill has shot up in recent times, we had a leak repaired in November and it settled down to its new high, but January went nuts to the level of a 6 person household. Ours is 3. We couldn’t understand why, but it hurt, especially on top of the new increases in water fees on the North Shore in Auckland. Last week we finally discovered a new leak right by the water mains and on 8 February we called Water Care Services. 

Ware Leak

Ware Leak

The call center staff were very friendly and said it would probably take 3 working days for someone to come and check it out. While we were waiting for this visit a lot of water went down the drain. A neighbor had a similar problem and Water Care sent them a contractor to check out the problem.

On The 13th I rang again and asked what was happening. They put me on hold, came back and said I was in a priority queue. I was pleased that something was happening. I asked if the contractor could ring when they were coming and I was put on hold again and she said that was fine, they would ring when they were on the way. I told her I was working from home on the 14th, so that would be great. I had a plumber booked for the 14th in case the problem was on our side.

No one came to our house on the 14th, but a Water Care contractor went to a similar problem about 4 doors down the road. My next door neighbor asked them if they could have a look at my problem while they were there. He said he would look into it. He didn’t. I postponed the plumber.

I rang the Water Care call center again on the 14th  and they explained that the contractor couldn’t look at our place because he didn’t have access to the works order for it. She said someone would be there before 11 on the 15th and they would call before coming as requested.

I worked from home again on the 15th, wanting to be there when the contractor came. At around 11:30 I went to the letter box, the area around the meter box was very muddy and water was coming out of the mains box in much greater volume than before. In the letter box was a note from a company called Lend Lease saying “SUSPECT YOU HAVE A PRIVATE LEAK”

I contacted the plumber who is unavailable for another 3 days and now we walk backwards and forwards to the water main, turning it on and off as required. The plumber said to us that there appear to be many instances in the area of higher pressure in the pipes (due to increasing water supply capacity works for the new Long Bay subdivisions and other growth in the area) causing leaks.

So a couple of questions for you and Water Care. How is it that you can send 3 contractors to the same street in the same street in different instances and you don’t have the technology in the 21st century to identify that there are other jobs that could be done at the same time? Sending a van out from wherever and back 3 times must be quite expensive (a bit like my water bill). If that happens 3 times in one week, just in my street, how much extra does it cost. Calls like mine to the call center which had local sounding people (which must be pretty big, because I never spoke to the same person twice), Maybe half an hour of time. Calls from them to contractors, another 15 minutes. Processing multiple works orders, maybe 20 minutes. 3 trips from vans to my street, with driving time, probably an hour each. That’s a lot of ratepayers money. It’s also a lot of wasted water, are the dams overflowing after this dry summer, that we can afford to waste it?

Does Water Care Services have sustainability KPI’s?

I’m starting to understand why Water Care charges so much. I know they have a geospatial database, one would assume they have a good CRM. Hopefully they will give me a rebate on the excess water for January and February, which I can apply to the plumber’s bill. I’m looking forward to having him fix the problem in a couple of days time.

I am wondering if other people have had similar experiences? Please feel free to leave a comment. By the way I am not a whingeing stirrer, I give credit where it is due to, for example my recent blog about AA Insurance, who provided me with fantastic service after someone dinged my car in a car park and took off. The thing is, I am a ratepayer, I am paying massive amounts of money for water and waste-water and I suspect that with better management or systems, I could be paying a whole lot less.

 

Workplace Bullying in Christchurch


Further to my blog this morning on how people are, or are not coping with stress from the aftermath of the Christchurch earthquakes, we are now hearing stories of increased workplace bullying in Christchurch. I don’t know how much it would take place normally, but this is another example of ordinary people being stretched to extraordinary limits.

According to a story published in many media this week, the stress levels are as high as would be found in a war zone. An AAP story says that scripts for sleeping pills and anti anxiety drugs are up and many people are self medicating with alcohol often resulting in violent incident, domestic and otherwise. Women’s Refuge reports a 30% increase in demand since the February earthquake.

A poll in The Press established that only 38% of people in Christchurch don’t want to leave. Of course as I mentioned in my blog yesterday on  Post Traumatic Stress in Christchurch, because of mortgage commitments, and the logical lack of buyers, many people can’t afford to leave if they wanted to.

Meanwhile Prime Minister John Key is still unable to say whether a decision will be announced this week on which streets or  suburbs will not be rebuilt.

Here’s another every day view from NZ Herald TV, brushing your teeth with lemonade because there is no water.

Preparation Lessons from Japan and Christchurch


It’ll never happen to me is probably the first thing. Even in Japan, which I have visited at least 20 times, I doubt many people expected anything like this latest earthquake. I experienced earthquakes on many of my trips to Japan. I have been in office buildings and hotel rooms and felt the vertigo as buildings sway. The thing is it happens so often that people take it in their stride and the evidence was seen with images of people standing on bridges watching rather than racing for cover.

A similar situation occurred in Christchurch, New Zealand. We all expected that if a big one did come, it would be in Wellington, not Christchurch. I used to be a Civil Defence rescue team leader and our earthquake training was all based around Wellington because it has a compact CBD, lots of buildings clad in glass and sits right on the fault line. Like Japan, they experience lots of earthquakes there.

What I really wanted to mention in this blog though, is the survival kits, the essentials required besides shelter and ablutions. That is water and power. Water has proven to be probably the biggest issue in many fronts. Basically water is the most crucial element. We can live longer without food, but not without water. We need water for drinking, bathing, cooking etc and when the water supply either fails or becomes contaminated, this becomes a major problem.

I will certainly be taking this more seriously in future because it was obvious that if you didn’t have any, your chances of getting your hands on water were pretty slim. In Christchurch for example, only one supermarket remained open. Not a lot for New Zealand’s 2nd largest city.

If you don’t have electricity, you can’t boil contaminated water, can’t wash yourself, your clothes and risk hygiene problems. A generator isn’t much of an option but gas is. We saw lots of images of people filling up their gas cylinders and having communal BBq’s because their refrigerators couldn’t run and food would soon perish.

Getting gas after the quake

Of course gas also means you can boil water. We were very lucky in Christchurch to not have outbreaks of cholera or other diseases due to water contamination, not to mention the inability to flush the toilets etc.

In this situation I’m not sure how much it would help, but these are easy things that I will be doing to ensure even though I don’t think it will ever happen to me:

  • Stocking enough water and non perishable food to support my family for a number of days.
  • Ensuring that I have a couple of full gas cylinders (remember that without power, petrol stations close)

Longer term I will look at replacing my hot water cylinder with gas. Doesn’t help if there is no water, but does if there is no electricity.

Then I get back to my hobby horse of solar power. A hobby horse of mine is that the government should not only be encouraging us, but facilitating solar power for both business and consumers. I’ve blogged before about feed-in tariffs and interest free finance for people to install solar panels as happens in other parts of the world. If we all had solar power, we would be much more sustainable. Obviously New Zealand will not be running nuclear power, even more so given the latest catastrophe in Japan. As I write this a 3rd nuclear reactor has lost its emergency cooling system after the 8.9 quake!

For a country that asserts itself as clean and green, I think this is a big fail. Maybe this would be an opportunity for the Green Party to assert itself. With the election due in November this year, if I was them I would be pushing hard for interest free subsidies for solar energy, especially for water heating. I would also be pushing for the right to sell surplus energy back into the grid .

When I was in the Netherlands a couple of years ago I saw many warehouses and farm buildings covered in solar panels. I also of course saw many wind farms. I thought they looked really cool, although I probably wouldn’t want one in my backyard. Fortunately for the size of our country we have plenty of space.

So have we learned anything and will we act on it?

The following video illustrates how people are so used to earthquakes that they don’t do what they have been trained to do.

The World Dairy Summit and Water


Auckland’s Sky City Convention Centre is hosting the World Dairy Summit this week, a conference which will be attended by delegates from all over the world.

I was pleased to hear that sustainability is a major part of this event, with a day committed to the environment. One of those sections is on knowing your water footprint and water accounting in the dairy industry. Another is zero waste, although I’m not sure if that takes into consideration the leaching of all sorts of bio waste, hormones and fertilizers into the rivers, such as the Waikato River from which we Aucklanders have to drink, but I digress.

In a recent blog about In Vitro Meat I mentioned that according to Fred Pearce who wrote the book When the Rivers Run Dry, it requires around 24,000 liters of water to grow the feed to make a kilo of beef, or 2,400 liters for a Quarter Pounder. Now that’s a lot of water. We’re quite lucky in New Zealand being an island nation, that we get a lot of rain, but a lot of the world is not so lucky.

Of course this water is recycled in some ways, although not scientifically, most of it flows back into the ground together with whatever chemicals and particulates have been absorbed with it. That is why I previously blogged about the water quality issue in Auckland with the Super City Elections, but this was not high on any agendas.

Now my blog has been criticized before by farmers saying I am anti farming. This couldn’t be further from the truth and I love eating meat. I’ve gone off pork in recent times having seen how its farmed, but I won’t say no to wild pork.

I chose the following video because it helps explain the water issue in growing beef, but I won’t be following the advice to become a vegetarian. I don’t think humans were supposed to be vegetarian. I just think we need to stop the outrageous waste of water in our current farming methods and find better ways to grow feed, recycle water and reduce the amounts required in the farming process. I hope that New Zealand will take a stronger leadership position on water and its preservation. We are on the verge of a global water crisis and I believe that we are taking it for granted that we will always have plenty downunder.

It’s Super City Election Time – My Question is Drinking Water


Driving home from the office last night, I saw a couple of guys waving from behind their placards as they do in the time leading up to the elections. I wondered if they felt stupid. I didn’t want to wave or beep the horn because I’d never heard of them before and really didn’t know what they were about. Just a couple of guys with wide grins that looked just like the photos they were standing next to.

I’ve had a little ‘junk mail’ from some of them which don’t tend to say much unless they are on the fringe with a cause and hats off to them for that. One was promoting a futuristic rapid transit system which looked absolutely amazing, something looking like it came straight out of New Scientist. He was a mayoral candidate, can’t remember his name because I figured he didn’t stand a chance anyway.

I just have one question for the Mayoral and other political candidates and that’s about our Auckland drinking water. As you may have noted if you are a reader of my blogs, water is a subject dear to me. I’m basically made of it and what’s in it therefore, makes me.

In a previous blog about Oceanic Dead Zones, I coincidentally touched on the fact that the Metrowater back room handshake between the Auckland Mayors of the day, that Waitakere would get first use of all fresh water from the Auckland rainforest dams and the rest of us would get a percentage of Waikato River water when required.

The plan about the Waikato Water (which Joel Cayford said was unsafe to drink) was that it would only be used at times when the dam levels were insufficient to meet Auckland’s needs. However I believe that because it cost something like $10,000 on maintenance costs every time the sluice was opened that most of the time it now stays open, despite its purpose being only for emergency use.

Now I’d like you to have a look at a couple of photos which I will link to. The first is of Dr David Sinclair and Dr Virginia Hope, showing their faith in filtration by drinking Waikato River water. Damn, the other photo I wanted to show you doesn’t seem to be available on the net, but it was of the French Defense Minister Michael Debre, swimming in the Mururoa Atoll lagoon after a nuclear test, to show how safe it was. Enough on that.

What I want to know from the new candidates in Auckland is what is their policy on having Aucklanders drink Waikato River water? Will Waitakere continue to get a monopoly on their fresh water from the West Auckland dams? Will the dams be better maintained (i.e. make them deeper by removing the silt mountain on the bottom?

With all the rain we have in Auckland, we should have much better than acceptable water quality (I noted a politician, can’t remember who it was in the media recently called it).