Here’s to Staving off Dementia and other Demons

I’ve been working on my CV over the last few days as my division and role are being disestablished. On the template there was a field for interests. Now if you know me, you will know I am addicted to learning. I am not happy if I am not developing a new skill, a new understanding or keeping up with the constant state of change in this amazing era I feel privileged to live in.

Why do we need to learn? For a start, we have a massive set of wetware in our skulls, that like any muscle, needs to be exercised. Just like muscle sinews, the dendrites in our brain grow or shrink as they are used or neglected. We have discovered this concept of neuroplasticity, or perhaps more to the point of it, science has proven it exists. We actually knew it all along. The link above has some great ways to grow your brain.

The challenge is to keep learning and my bent is to understand, not just absorb data. We have Wikipedia and Google to do compile the data, we need to understand what it means. We need to be ready to identify our weaknesses and keep pace with change. If we don’t the consequences are dire.

I told someone this morning that I feel like I am living in a science fiction novel. The space race is back on, our oceans, lakes, rivers and seas are polluted. Temperatures all over the globe are reaching extremes, we’re getting rid of plastic bags, the political trend around the world is becoming more nationalistic in many places, as we try to protect something we may not have actually had. Children are rising up and being recognised.

I have to chuckle at this one, because I tried that back when I was a kid. I was lucky to have the opportunity because whilst children were sent to schools and universities to learn, their views were largely ignored. Today they are realising that they can’t let grownups screw up the world that they will inherit.

The challenge was that we didn’t have social media and broadcast systems that allow children on one side of the planet to encourage people on another side of the planet to ban plastic bags. I remember being involved in seminars as a teenager with groups like the World Council of Churches and Paulo Freire, whom I was very lucky to have met and spent time with.

Paulo’s critical pedagogy which is now considered new, included the premise that “Study is not measured by the number of pages read in a night, nor by the number of books read in a semester. Studying is not an act of consuming ideas, but of creating and recreating them”.

That’s how we moved from the Morse Code machine to owning, often more than one smartphone, each with more computing power than was used in the entire Apollo 11 Space Programme.

Successes didn’t happen overnight. For example there were many failures before that light bulb lit up and stayed on. We didn’t stop with that incandescent light, we tried and failed and failed and tried and look at the amazing options we have now. Garden lights powered by the sun that work for years and cost less than $5 each!

So what happens when we stop learning? Have you had the sad experience of having to put a family member into a rest home? What happens in most of those places? They have limited resources and the people in them spend a lot of their time withering away until they no longer know who they are. Yet, we know that playing them music they were once familiar with, can bring them back. Things they learned are still there, but the dendrite connections turned off.

I wonder how we will use that knowledge now that it has been accepted as scientific fact, because dementia is at its highest level in recorded history and I’m not sure it needs to be.

I actually wanted to write about interests and one of mine is linguistics. At various times I have learned and spoken around 8 languages. I formally studied 6 of those. The other one, which I have forgotten was Hungarian, which I learned at 3 because my neighbours at the time only spoke that language. It was easy for me because I already spoke Dutch and English and learned French and German because my parents used it when I was a child, to have a conversation they didn’t want me to understand. Now there’s motivation for a kid to learn something!

I also wanted to talk about conferences, having attended, chaired and spoken at venues in 10 countries around the world, frequently sharing the frustration that most of the people that needed to attend weren’t there, because they were struggling to survive in a changing world and didn’t have time to learn the very things that would save their business. So instead of using Freire’s pedagogy, they kept repeating what they had once been taught, even though it was no longer relevant.

The number of people I have come across who say they know all about their business seems interesting proportional to the number of businesses that are going broke, or the models that are failing because disruptors have delivered what customers were asking the incumbents for, and not getting. So we were frequently preaching to the converted.

I’ll come back to the importance of language in another article, because it is a subject in its own right. Language and linguistics has provided me with a rich career in business and communications. It has taught me much about culture and helped me develop friendships and business relationships around the world.

But haven’t they changed over the decades? My cousins in Holland frequently use words I haven’t heard before and the technology is also now taking us into a whole new area of language, much of which is international, like emojis.

Anyway, I’d like to tell some stories about languages and the value of learning, but you’ll have to watch this space to find them. That’s assuming you still read, but of course you are here. That’s probably a sign of your age, because after writing my latest book targeted at millennials, I realised that many do not like to read at all, but will happily spend hours on YouTube watching educational videos. Maybe one little take away if you are in a business where you want to communicate with people. It used to be simple back in the day.

The things we were taught about in communications decades ago may still work in some niches. The principles still apply, but as Freire said, you have to create and recreate ideas.

So WTS and I’ll BRB 🙂

When People Say Good Luck

I was in the shower this morning listening to Episode 55 of The Poker Mindset podcast.

One of the topics they discussed was wishing people good luck. Like saying “good luck on the table tonight”. Gareth made a great comment along the lines of (paraphrasing) so the 3,000 hours of playing on the tables and 500 hours of study, come down to good luck? I hope not.

It’s been a while since I consciously thought about this, but I rarely wish people good luck unless it is with their Lotto ticket or something that truly requires luck. There is no skill in parting with cash for a raffle. Otherwise I do feel that wishing someone luck, is almost a sign of disrespect. You know, like a sarcastic “Good luck with that!”

I’m waiting for approval from ACC for back surgery and when it finally comes, I don’t want people saying good luck. I’m relying on the surgeon having completed years of diligent study, of his attention to detail, a great team alongside him, all with many years of experience and the fact that he has performed the particular fusion operation, which is fairly new, over a hundred times with only one surgery that had complications which I believe were unrelated.

I met a cop recently (I only mention his occupation because fitness is a crucial part of his daily work) who had the same surgery from the same specialist, and he was back on the job after 6 weeks of recovery. That’s what I want.

I was going to write a spiel about some of my many past career successes, but it started looking like a memoire when I still have a good chunk of my career ahead of me. The crux of it was a saying I really like and that is probably all I really needed to say.

The harder and smarter I work, the luckier I get.

Your thoughts?

Lingering Effects from my Second Float in 1987

Following on from my blog on my second float, way back all those years ago, I made some notes four days later. Take them as you will. From 29 September 1987:

“It must be having an effect. Today was an extremely hectic day. I was writing proposals and attending meetings at a frantic pace. I was suffering from heartburn (turned out that I had a duodenal ulcer) by midday and finding it almost impossible to unwind.

Yet, although I am exhausted, my jaw is tender from clenching my teeth and I have a slight headache and despite the issues going on behind the scenes at work, I am feeling unusually cheerful.

I also feel as though my head is clearer, memory access improved and my thinking power is enhanced.

I will treat these impressions with a grain of salt, because I can’t prove that this is from the float, but I don’t have any other explanation.

I still get this strange feeling in my right temple region. It is a positive feeling, almost like a vague pleasure twinge. Unfortunately I can’t really describe it other than like a gentle ongoing endorphin flow.

The current edition available from Amazon

I have just been reading in ‘The Book of Floating’ by Michael Hutchison, that as a result of various studies by researchers including Roger Sperry, Michael Gazzaniga and Joseph Bogen, it was demonstrated that “Not only does each hemisphere of the cortex have its own consciousness, thought and its own memories, but that the two sides think or operate in fundamentally different modes”.

This is exactly what I experienced after my first float, in the differing perspective and ‘stereophonic or divided brain thoughts‘ relating to the distance from my eyes to the ground. At the time I put it down to a natural high induced by the increased flow of our naturally produced opiate.”

However, if you watch this video, perhaps as with early research using float tanks, illustrated in the movie ‘Altered States’ you will see there is some interesting theory which suggests we have a lot more concurrent thinking capacity than we consciously use. This is something that David Kadavy seems to be promoting.

Reading this back, I sound a bit like Sheldon from Big Bang Theory and I admit I will always be a bit of a geek. I was listening to the October 31 Born to Write podcast this morning from Azul Terronez interviewing David Kadavy:

David Kadavy is a creative entrepreneur and author of Design for Hackers: Reverse-Engineering Beauty (which debuted in the top 20 on all of Amazon), The Heart to Start and multiple “short reads.”

It reminded me of some of my early school days, like when my teacher got fed up with me correcting his misinformation once too often and picked me out of my seat and threw me across the room in front of the entire class. I understand his anger. I was always catching him out. Just as well we didn’t have Google back then. I’m a bit OCD when it comes to learning and using what I learn. From my earliest memories, I was asking ‘why?’ in Dutch, English, French, German and Hungarian at about the age of 4. Our brains are almost limitless vessels saying fill me with information. The more information we have, the more we can see patterns in disparate areas and realise that ultimately as Hawking would have put it, everything is connected.

Anyway, that was the four days after my second float. It continued to deliver benefits days after.

If this is boring, skip my next one in this series about my third ever float. (Don’t worry this won’t continue to my 200th! lol) As I mentioned previously, if it does peak your interest. Check out Float Culture in Auckland or find a float tank centre somewhere near you.

Learning How to Create Web Based Training Courses AND How to Improve Your Texas Holdem Skills

I’m currently at home with a back injury that has seen me popping pain meds, visiting the hospital, specialists, GP, doing hydrotherapy, MRI’s, X-Rays and I’m off work and can’t drive. (Insert image of violin) This is really frustrating as I love my job, but I can’t do it justice as yet. Hopefully soon…..

Some of my blogs may represent the lack of clarity in my mind, but I know what I’m trying to say and I do edit them many times.

What I have been doing is learning more about SEO and while playing poker badly, I’ve been playing a few games and learning how to do video recordings using the computer.

So I decided to test it out by recording a couple of videos on topics I’m interested in. One was on blogging and how to improve your Google ranking by adding metadata and keywords to the images you use as well as how to sell them.

The other was how to get a handle on your opponents when playing Texas Holdem using an app called Poker Tracker 4. You can get a 30 day free trial on this app by using this link. Just as a disclaimer, it is an affiliate link which means that if you like the free trial and decide like I did, that the software is worth buying, I get a little something for my effort in creating this training video.

How to Make Money from your Photos AND How to get more interest from Google to your blogs

I have joined a photo site called PicFair which is a stock image site which is a bit different to others. I have done a number of paid photography gigs which is great AND a long time ago. I had one good sale to Getty’s when some boats ran aground in Auckland after a storm, like this one which I took outside Fergus McCormack’s Kayak and Skate Hire in Mission Bay. But mostly the money goes to the famous photographers or get used for free, often via social media.

Anyway, I’ve been meaning to complete the metadata on hundreds of photos that I have taken over the years, but never got around to it and never really saw the reason why I should. This morning in the shower I was listening to the Home Business podcast which featured Elaine Rau AKA LadyBlogger, who had some great information about SEO.

So the key to it was how important the metadata is that you have on your photos because Google doesn’t just look at the content and keywords in your blog, it also looks at your links and the data behind your photos.

So I love sharing my photos (and I’d love to make some pocket money from the images if I can so I can perhaps put it towards a new camera, although these days you can of course take amazing pictures from your mobile (and PicFair is happy to take those too). A disclaimer here, the link I have shared is an affiliate link. That doesn’t mean you would make a cent less if you use it, but if you do use it and sell photos, I can benefit too and of course you can do the same if you sign up.

Anyway I just wanted to share that info and from now on I will include metadata in my photos before I publish them in a blog or on a photo site. In the coming week, I have recorded the video below showing not only how to do that, but also how to work out what keywords to actually use using a fantastic new tool I discovered last week called Ubersuggest. I demonstrate how I used it in this video.

Blogfade and a Back Injury

Have you missed me? I’ve been off the grid, after trying to be superman and  lift a heavy bag of tent poles out of a trailer for a 4 room tent at Relay For Life and following that up a couple of weeks later mowing wet lawns (Auckland right?), piling up the clippings into a barrow and then lifting them to head height to empty into a garden bag, the straw that broke the Cappel’s back.

MRI Result? 3 bulging discs on both sides of my lower spine, all touching nerves and causing me lots of pain in my back and legs. I had 3 (starting very early in the morning) day trips to hospital when the pain was at 9/10, each time they kindly shoved a finger where the sun don’t shine to check that it still had muscle control, because my left leg is very weak and I had no sensation surrounding my left knee and referred pain down both legs. Or maybe they did it to scare me into not coming back:)

I thought I was over that one with my prostate cancer which has been in remission for just over a year now!

It was a real eye opener sitting in the triage rooms and seeing how awesome the staff are, dealing with a constant stream of frightened, sick and sore patients. My hats off to the staff (and the volunteers who fed me) at North Shore Hospital.

So I’ve been popping morphine and other drugs, (off work for almost 2 months on ACC) to the point where my brain has been mush. It only hurts when I stand, walk, lie down with a pillow between my legs (for more than 4 hours) or sit (only on a wheat bag on a straight kitchen chair with another bag on my back as I look longingly at the couch). I can’t drive and my decision making is such that I would not represent myself or my team well at work. I’m good at putting things in the wrong cupboards or forgetting what I went into a room for.

I’m not complaining, the drugs are keeping the pain between 4-7/10 and whilst I hate not having a clear head, having no responsibility means I can focus on getting well and not worrying about dropping clangers at work where I really do need to be on my game. My wife kindly took 2 weeks of work at the beginning to look after me. I can now look after myself and walk to the letterbox and back. Not twice in a row though I discovered.

The good news is I am mending. Tomorrow I will be getting 3 Transforaminal Steroid Injections guided by x-ray to within half a millimeter of the 3 nerves (sounds impressive doesn’t it). I had one a few weeks ago and it got the pain levels from peaking at 9/10 to peaking at 7/10, so we’re hoping that this lot will bring it down to a level where I can reduce the meds so I can stay in bed all night and get my brain back to near normal and start planning my return to work.

Work by the way has been fantastic. I have really felt bad about not being there with my team at the end of the financial year, but conscious that if I don’t recover carefully it could be much worse. As it is I’ve been told to be extremely careful after the injections because my back pain may be reduced, but I will have to be really careful when the pain is down to not lift or do sudden movements which could set me back, so I’m expecting some physio to follow.

So I’ve been off most social media, blogs and anything else requiring concentration, but I have been thinking. About real estate and location based services and all the mistakes we make when we buy houses. As you know, I wrote a book a few years ago about using apps, maps and location based services. I’m now looking at a follow up course rather than updating the book. I’ve been thinking about this while I’ve been off and am keen to hear from anyone who would like to share mistakes or things they would do differently when they buy their next house.

I’m not looking for sympathy, but I’d love to hear some stories about homes you have bought and things you should have checked out first, maybe the neighbourhood, crime, amenities, the commute, property values, flooding or other things that you could have researched first. Drop me a comment. Apologies for any typos, I did proofread this about 10 times.

 

On Homelessness, Being Trustworthy and the SuperBowl

Yesterday I had a day off between two holidays. I was going to go for a Fly Your Own Scenic Flight in a Cessna 162 at Ardmore, but the weather looked a bit dodgy and my car got trailered to an auto electrician in Pt Chevalier at lunchtime on Friday who said he was going to check the diagnostics and let me know why the engine lights kept coming up. Ardmore is an hour from here so a long drive with a high risk of rain.

I rang them 3 times after that and they said he was really busy and would call me back. I’ve been ringing ever since and I think he’s taken the long weekend off. It’s now Tuesday. We’ll come back to trustworthiness again later. This guy has been trustworthy before and was recommended by the man I bought my car off as an expert in Corvette’s. He didn’t let me down the other time I went to him. I suspect he is the sort of person that takes on more than he can handle and that frustrates his manager who in the end wouldn’t let me speak to him. So I’m not sure how I’m getting to work tomorrow or when I will see my car next. I think the thing about trustworthiness is it must be pervasive and consistent. It wasn’t.

Anyway, the weather improved a bit and I borrowed a car off my daughter and went into town to visit my friend and your Giapo for a chat.

I parked at Sky City, because it was free courtesy of a couple of poker matches and walked down Queen Street, where in almost every doorway sat someone with a hat out, not making eye contact, mostly no note and a vacant drug stare in their eyes, not the “I can feel it coming in the night” rush I saw on Louis Theroux’s Dark State – Heroin Town on TV recently, this was more like everyone was isolated in the same bad trip.

I had about $18 in coins in my pocket, planning to give some to buskers if they were making an effort, given that I had done some busking in my teens and I respect people who are prepared to make some sort of a trade for value.

Then I walked past this white guy, (his term) in a tidy shirt, clear drugless blue eyes and a hat in front of him with a lonely silver coin looking up at me from it. I turned around and walked back. I asked him if we could chat and if I could ask him a few questions. He looked me straight in the eye, blue eyes to blue eyes and said “Sure, I’m not going anywhere. What do you want to ask me?”

I said “I don’t want to offend you, but how did it come to this?”

He told me that a couple of years earlier he had been working as a labourer, had an accident which left him unconscious in hospital with severe injuries, to the point that he could no longer work when he got out after a couple of months. He couldn’t earn money (still can’t because of tremors and the scars looked pretty real where his hand appeared to have been pulverised). He and his wife lost their State House and then he lost his wife and kids.

With nowhere to go he now lives in a street doorway in downtown Auckland, except when he can find the $10 to get into an Internet Cafe where they don’t mind if you sleep in the night.

I asked what he could do and he said he didn’t know. His body didn’t give him much of a chance to get work and therefore a room and the only work he had been offered was with the gangs and he said “You know where that would end up. Back in jail and I aint ever going back there.” I didn’t ask what he had been inside for but he said it was about 24 years ago. He told me how he had survived by studying on behalf of inmates who were trying to get qualifications and explained how they would arrange it so that at exam time, the guards would let him go in and sit the tests on behalf of inmates that would have failed. He was very bright. He helped them and got to use his mind and they left him alone and safe.

It was clear that he couldn’t do physical labour, but he is 51 by his reckoning and the only way off the street is to work. Without a street address, he couldn’t get a benefit or his first hand on the rung to get out. He told me a lot of stories and he did have a good head on him so I asked if he had done any public speaking. He said he had been a member of Toastmasters while he was in jail. He found public speaking pretty easy and I thought of people I know who tread the circuit and thought he could probably hold an audience with his experiences. I said to him that the chances I could help him were pretty close to zero and not to get his hopes up, but I would ask some questions and I shall.

I dropped the change I was planning on giving to buskers into his hat and with a big grin he said “I’ll be staying in the Internet Cafe tonight.” He went on to say that he had to stash the money because if street kids saw any money in the hat they would run past and snatch it. He said he had been through 7 hats already that they had stolen.

I shook his hand and went on to visit my friend Giapo in his awesome new gelato shop.

This was my first visit to the new store (I know it has been there a while) and there was one thing that never changes. There is always a queue of people waiting for their Giapo gelato experience.

If you haven’t been to his new store in Gore Street, Auckland City, you owe yourself a treat.

This is no ordinary store where they wet an aluminium  scoop in a container of water and drag some ice cream into a cone from the cardboard tub of your preference.

You are purchasing a culinary experience the equal of what you would get from the kitchen of a master chef. You will be taken on a journey of testing and trying flavours, even while you are standing in the queue Eventually a unique visual and sensual experience will be delighting you and your friends, while you are looking at and consuming it, followed by the sensation that you are sated and satisfied and looking forward to recommending it, the experience, to your friends. This is no drive to Pokeno for an ice cream, this is theatre for the eyes and taste buds.

Giapo and I have wonderful conversations and it was also great to finally meet his amazing and beautiful wife in person. I loved that she gave me a firm handshake and looked me in the eye, I don’t like limp handshakes from anyone. I know these last years have been a big journey for her also. Behind every consummate dreamer is their best friend and partner and without her the stumbling blocks are that much higher. We deep thinkers need a leveler and someone to sometimes ask how and why and finally, “how can I help?”

Giapo is an economist, a mad scientist, a gastronome, a master chef, a 3D printer, a social media maven from way back, a purveyor of experience, an artist and a man who speaks with absolute passion and Italian gestures, from a big heart, who wants to leave a legacy of experiences bound by trustworthiness for himself and his business; and a secure income for staff who want to use his business as a stepping stone for his own career.

We have many experiences in common, including both being deep thinkers and the visit left me with lots of thoughts and questions about what a trustworthy business looks like. The simple answer is that he was going to take many years to build it and would find out as it developed. But I can say that trustworthiness for Giapo includes:

• Consistently delivering a quality experience that is like going to theatre for the eyes and taste buds. I have never seen anyone leave disappointed;
• Passion for delivering something of quality including his relationships with staff and the products.
• Passion for his staff and helping them make what they will from the work experience and wishing he could do more with and for them.
• Helping his staff develop ideas, for example he runs Chef’s Table gelato degustation evenings and VIP evenings (they were set up for one when I was there) which includes matching music to the course, something one of his students is studying.
• Having a genuine passion and compassion for his customers (and friends) that never wavers, Giapo is who and what he is, not someone living a persona.
• Making sure that he looks after himself, his health and fitness so that he can be well in order to run his business to deliver the trustworthiness he aspires to.
• Recognising the importance of family, that includes those of his customers (friends like me and my family) and of course his own, those here and those back home in Italy.

There is something I deeply admire in people like Giapo. There is a sincerity and depth of purpose that he strives for every day, rain or shine, winter (not the best time for gelato) or summer, year on year.

It is a desire to be the best and continue to push the boundaries of what that means, each and every day and he has now done that for years past the use by date at which 80% of businesses go broke. He has proven that it is sustainable.

I’m not saying it has been easy. It’s tough when you are creating a unique business with a unique set of values and direction. Where ultimately you want your business to conform to a set of ideals. Where, if you consistently over-deliver on your promise of a wonderful experience and people trust you that if they tell their friends how great it was, they will confidently wish that same experience for their friends.

Like fractals, (something Giapo used to tell me about years ago, that branch out like pretty ice crystal flowers) customers all over the world would say “If you go to Auckland, New Zealand, you really have to go to Giapo in Gore Street. It will be a highlight of your trip.”

Anyway, enough of that, it’s a beautiful day, go and visit Giapo and let him know I sent you.

On the way back to Sky City to pick up the car I borrowed, I walked past a noisy bar with an American flag outside. It sounded like there was a show on, so I walked a bit closer to see what was happening. Yep, you got it, Super Bowl 2018. I’m not sure whether the audience was that worried about whether the Eagles one. Heck, I’ve only ever changed planes at the airport there on my way to or from Ithaca NY, but we love our sport in Auckland and despite the showers, it was a great day for sitting in a bar watching sport on TV.

Off I went home to do my thing, working on recording my second track for The Cancer Diaries, my charity music EP and Music Videos for cancer patients and their supporters, a bit of writing on the two books I am working on and pondering with my wife on the nature of trustworthiness as a pillar foundation for a business.

I have 2 questions for you:

What does trustworthiness mean to you in business? ; and

Have you been to Giapo yet. Looks like a great day for it today.

 

I’m in Remission, New Song for Cancer Album and Relay For Life

What a week I had last week, back to work blues, PSA blood tests for my prostate cancer and the usual agonising wait for yesterday’s meeting with my oncologist after my blood tests on Wednesday and more.

So the visit was short and sweet, my PSA levels have gone down a little, without the help of any more drugs and after prodding my stomach (not quite sure why and I didn’t ask) I don’t have to go back for another 3 months.

That’s a weight off my mind and I can refocus on getting on with life and I have so much I want to do.

First, there’s Relay For Life on 10-11 March. Team Early Birds is back for another year and I need your help. Our team is a little smaller than in previous years and if you would like to join us, we would love your company. You can get all the detail here.

If you can’t join us, it would be great if you could leave a little donation. Even $5 is tax deductible and it is an awesome cause. With one in three Kiwis getting cancer, anything we can do to aid research and the awesome work of the Auckland Cancer Society who have been a huge help to me, is welcome. Last year I raised $1,500. So far this year I haven’t got to $50. So either way, can you lend a hand?

My Big Project A Cancer Video EP, the Last Song

As you may recall, dear reader, I am working on a HAG project which is huge, creating an EP and video series for people with cancer and those who are supporting friends and family with cancer in some way to help them on their journey. If you missed that story, details are here and again I need help.

The last song is called Dare to Dream and after the good news again on Saturday, it seems the right time to share the story and lyrics with you. This song is intimidating to me because it has tracks that I can’t play including a sax and a gospel choir. I have no idea where to find either of these, but I am confident that with some help from my friends, I will.

The song is about being told I’m in remission and trying to process what that means. I used to think that being in remission means that you are cancer free, but when I asked Benji, my oncologist about that he said “You will never be cancer free. Once you have cancer, you have cancer. Remission means it is in control and you don’t need any treatment, for now.”

So for the foreseeable future I will be stressed out on the last week of each 3 month period and hopefully like yesterday, will be told the good news that I continue to be doing fine. Benji thought I was looking very well and looking back at photos of my pasty pale face of a couple of years ago when I was undergoing radiation treatment and dealing with chronic fatigue, I look great!

So if you’re still with me, here are the song lyrics. Super Better is an awesome book by Jane McGonigal which now has a game and a Facebook page. There is also a great TED Talk by her for those who don’t want to wade through the book.

Verse 1
I’m in remission, it’s a reprieve from my condition

In 3 months I’ll know more, for sure

Pinch me am I dreaming? Please explain the meaning

Before I close the door, does this mean I’m cancer free?
Chorus 1

The winter sun is crisp and clear,

I’ll write a list for 10 more years

Of things I want to do and see,

Things that mean the world and

Dare to dream, dare to dream

So much more for you and me

So much more that we can be

Verse 2
I’m in remission and I give myself permission

To embrace each new day as if the cancer has gone away

I’m going to grab a power up a SuperBetter lift up

Cause there are many on our team

Who need to dear to dream.
Chorus 2 (gospel choir for alternate lines)

Dear to dream

Watch me lift my hands up high

Dear to dream

Reaching out to touch the sky

Dare to dream

Take off like a bird and fly

Can’t believe this feeling

Repeats after break with lead guitar and horn section

So there you have it. I’m currently working on the demo for my second song called Who Stole My Words, which is about an incident where the chronic fatigue brain fog meant I couldn’t come up with simple words like current and channel to explain how I found myself upside down in an ocean kayak, without any fight or flight instinct because I wasn’t producing cortisol or adrenaline. I was upside down, underwater harnessed in thinking ‘this is interesting’. Anyway, I’m having a bit of a struggle going from fingerpicking to strumming and staying in perfect time with the clicktrack so I can add a walking bassline. But that’s another story.

So, can you help with Relay For Life, either with a small donation, or joining the team for 10-11 March in Mairangi Bay at the Millenium Institute? I’ll be there all night relaying with family and friends to raise money for the Cancer Society and in honor of the friends, family and colleagues who are fighting or who have lost their battle with cancer.

Do you know an Auckland based Gospel choir or a small horn section, or at least a sax player who could help with this song? The album will be Not For Profit by the way. I know I will have to pay for some of the work, which I will crowd source, but the end product will be free.

Want more info on my cancer journey? You’ll find it here. If you know anyone else who might find this interesting, please share it with them with my thanks.

This is Intimidating! I Need Help! A Cancer Journey EP/Video to Help Others Sounded Easy.

The entrance to the radiation therapy room at Mercy Hospital, the start of my days for 8 weeks

Do you know anyone with cancer, depression or other debilitating conditions? Do you suffer yourself? Perhaps, like me you have a health condition yourself; and like me want to create something positive out of it, including coping strategies and fighting to find yourself back.

Would you like to be part of something that resonates with your values and help support me on this HAG (Hairy Audacious Goal)?

Yesterday I posted about Item #2 of 150 on my Life List inspired by Danny Dover author of the Minimalist Mindset, other books I have read like The Happiness Trap, podcasts like The Hidden Why by Leigh Martinuzzi, people I saw on TV programs like The Voice who had been on much tougher journeys than me and dared to dream of achieving lofty goals during the time I have been on my prostate cancer journey.

With the help of some good friends and family, some also still suffering from cancer I dragged myself out of feeling sorry for myself and decided that number #2 on my 150 long Life List of values based activities would be to created an EP and Video set of songs that were part of my catharsys and development, such that it will resonate with and help other cancer sufferers and their friends, family and support network.

I’m wondering if I have created a monster. How will I achieve this and 149 other things to boot, let alone find the energy for it, without detracting from my day job, which I can’t financially do without (and am passionate about)? How will I achieve this when I still frequently have to be woken up in the evening after my day at the office?

The answer, which is the same one as my cancer journey is that I can’t do it alone. In order to help other people, I need help from a team of people with a rich source of experience and some that can help with less specialist areas of support. Everything from project planners, musicians, vocalists, videographers to sound engineers, artists, production, social media, marketing and crowdfunding. Are you one of those?

I also just need supporters who can help spread the word, connect with members of the team, make cups of tea (or Texas Honey), run around after us and keep us on track and provide emotional support. We’ll need studio’s, technology, sound gear, meeting space, This is a pay it back or pay it forward exercise and should be a lot of fun.

Just since yesterday, I have already had firm offers of help from people, which is awesome and I will take them up on it. I’m going to need a pretty big team with a wide range of skills and it’s a labour of love, a not for profit venture.

Check out this short video with Danny Dover and see if it resonates with you. Is your life meaningful? For some of us it takes a reminder of our mortality and human condition to force change. Then you have to do something about it. You might like to take a similar journey and if you do, some elements may overlap. I’d love it to be this one.

So, this morning I started documenting what I am going to have to do in order to achieve this goal and it is huge. It could almost be a full time job in itself, which  is intimidating, but if I can find plenty of experts in different fields who will support me and donate time and energy; and find funds for the parts that I have to pay for, I’m going to make this happen. I’ve done it before with The Wireless Forum, Glenfield Music Centre, parents committees, sport club committees, Auckland ICT, SMEI International and more, all while keeping down a job. Anyway:

This is what I came up with for starters and it’s by no means complete:

Plan for Cancer Music EP / Video Project

1. Concept Document and elevator pitch
2. What help do I need at each phase of the project
   1. How can I even do it while keeping my job and energy?
   2. Project Manager
3. People or organisations that can help me
   1. People who have raised their hands
   2. Influencers
   3. People I would like to approach for help
   4. Mentors
4. Finance
   1. How much do I need?
   2. Where do I get it from?
5. The songs
   1. Finish them
   2. Practice them
   3. Write a story about each one
6. What do I need for each song
   1. Record basic demos
   2. Identify the sounds I want for each song
   3. What instruments / vocals do I want for them
   4. Find artists
   5. Find a producer
   6. Find a studio
      1. Engineer
      2. Mastering
   7. Record in conjunction with videos
   8. Video the entire process, not just the songs
7. The video/s
   1. What is the story for the whole production
   2. What is the story for each song
   3. Find a videographer
   4. Write each song story
   5. Find an editor
   6. Production team
8. Presentation
9. Publishing
10. Marketing
    1. Facebook Page
    2. Promo/merchandise
    3. Raising awareness
11. Launch event and concert gifting the outcome to the Cancer Society
    1. How would they use or benefit from it?
    2. How will it reach patients and their supporters?
    3. How will it endure

Want to be on the team?

I’m in remission, Life List and moving forward

So I’ve just been told that I am in remission:) My first question was, what does that mean? I always thought it meant something like being cancer free, but my oncologist said that once you have cancer, you are never cancer free.

So what does it mean for me? For now, no more drugs and tests for 3 months (that’s the second lot of 3 months now) and that in itself is a big relief. I’m still getting my head around it.

I don’t want to write about my cancer as such other than a brief update and perhaps to help others on a similar journey. My fatigue is way better than it was and I am able to stay awake longer than I was, almost normal, although I still nod off if I am in an easy chair, but I am no longer fighting to stay awake at 6:30 PM, (every night) or playing Candy Crush to force myself to stay awake.

I do still tire easily, especially on long work days or trips, but it is getting easier.

I am still not producing cortisol, which is really interesting when you are on a rollercoaster that suddenly races off at a great rate of knots and everyone around you screaming and you’re thinking “hmm this is entertaining”. Or lying upside down in an ocean kayak, in a current thinking “This is interesting, I suppose I should pull the ripcord on my sprayskirt and get out so I can breath”. But I am aware of where I am at and much more cautious when it comes to driving if I am tired, or not looking at my mobile while I walk on the footpath and especially crossing the street with so many red light runners (3 just yesterday as I was going to buy some sushi for lunch).

I meditate every night using the Headspace app, which has been very helpful, especially with sleep and the way I respond to situations. I’ve been doing a lot of work on my values and what is important to me, which leads me to my Life List.

I am listening to The Hidden Why podcast, by Leigh Martinuzzi frequently (amongst many others), which I recommend, he’s pretty good for an Aussie (sorry mate) and a prolific poster and traveller on the topic of Why, which is pretty much the key to everything, right?

Recently he interviewed Danny Dover who wrote The Minimalist Mindset, which I am currently reading. I got it for a minimalist cost on Amazon for Kindle, but I’m tempted to buy a hardcopy as well, because it is the sort of book you want to read with a real highlighter and Post-It Flags, rather than virtual ones, because they are easier to use. In fact I might buy a few copies to give away to friends.

So I’ve had a Bucket List which I revisited since I was told those three words ‘YOU HAVE CANCER’ and some of the things I wrote about were things I wanted to have, like a National resonator steel guitar, which really doesn’t matter to me, and a Corvette, which does.

But what Danny did to help himself out of severe depression was create a Life List of 150 things he wanted to complete within a 10 year period and they are values focused and I was inspired to do that. So I officially started that list today and am part way through reading his book.

I’ll blog about the Life List separately because it will be part of my process and I hope it will help other people to focus on what matters to you rather than ‘stuff’ to have or own. I’m also going to work on it with my wife, although there will be things that matter to us and things that matter just to me, so there will be overlap.

It’s a shame that it takes something like having cancer to wake us up to put more effort into life, not that I haven’t put a lot of effort in, but there are many things I could have done better, and many different paths I may have chosen. The important thing is my focus on a future based on my values and I am very clear on what they are. So today on 8 August 2017, I am starting my 150 item Life List of things I want to complete by 7 August 2027.

I have started item 1 and if you want to know what it is, watch this space. It’s pretty cool IMHO.